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  • tonight's episode: Linda -- talk about it here

    After graduating college, Linda found success working as an extra in Hollywood, achieving the glamorous life she always wanted. But her dreams died when she came down with Ehlers-Danlos Syndrome, a rare disorder characterized by joint dislocations. Linda started taking fentanyl, a painkiller 100 times stronger than morphine. As her painkiller use escalated, she claimed that different sources were causing her pain, including electricity, energy, colors, and even specific people. Despite Linda's wild claims, her mother clings to the belief that Linda's pain is real and she must do everything to help her, including depleting the family's savings and sending her son to be Linda's caretaker.

     

    Missed the episode? Watch it here.

    Edited by aetv_dlg, 4 years ago

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  • Re: tonight's episode: Linda -- talk about it here

    I'm glad you were able to pick up on my tone because that was exactly what I was going for. After watching the show I was disgusted. You can defend her as much as you want but I did not buy her act. Running away from people because they caused her joints to dislocate, screaming as if she were a child, is not how you react to family. It was childish and just plain brat-ish. Furthermore, getting annoyed because her brother put her food in the wrong place while he was trying to straighten up the house makes me believe even more that her dislocating joints were just a way to get people to pity her and do chores for her. I could go on and on but I doubt it will make me feel any better haha.

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    • By itzbrittany13
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  • Re: tonight's episode: Linda -- talk about it here

    I'm not particularly defending her behavior, even though I can think of factors that excuse some of it (and I regret giving a Linda-lackey impression a year ago). I will defend her against the ideas that she didn't (and doesn't) have health problems and that she was/is the evil spawn of a good family. The episode was not very accurate, and it happened more than 2 years ago, so I think it's time for the bashing to drop off. If people want to criticize Linda, criticize her for hardly fixing herself and her life since then, despite many opportunities. Her behavior in this thread continues to be bad.

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    • By haroldcarvey
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  • Cell Phones and Sleep

    Dr. Oz said something interesting, which is that cell phones have been shown to interfere with sleep due to their EMF. I suppose that other electronic devices could have a similar effect, and long ago I might have heard advice on TV to sleep with them far away from the bed.

    http://en.wikipedia.org/wiki/Mobile_phone_radiation_and_health#Sleep_and_EEG_effects

    In other words, that might be a reason Linda reported being unable to sleep back in the bad old days. Although pain and medication probably are more to blame....

    Edited by haroldcarvey, 1 year ago

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  • Withdrawal Symptoms, Negative Emotions

    I was tipped off by a comment on Dr. Drew's show.

    http://www.nlm.nih.gov/medlineplus/ency/article/000949.htm
    http://www.rapiddrugdetox.com/detox-facts--drugs/actiq-drug-facts--actiq-detox-information.html

    Actiq withdrawal can be a painful process, particularly after heavy use. Symptoms are typically experienced within hours of stopping the use and can last up to several weeks after, depending on the intensity of Actiq use. Symptoms of Actiq withdrawal can include sweating, malaise, anxiety, depression, cramp-like pains in the muscles, severe muscle and bone aching, leg kicking, yawning, sneezing, tears, severe and long lasting sleep difficulties (insomnia), nausea, vomiting, diarrhea, goose bump skin, cramps, and fever. Some patients complain of a painful condition called “itchy blood”, which results in compulsive scratching causing bruising and open sores on the skin. All of these symptoms can be quite pronounced, causing the patient to experience such intense pain and suffering that a “cold turkey” withdrawal is unbearable, causing the patient to continue their drug use.

    That's partly why Linda in the episode was so erratic and in so much pain. Actiq is short-acting, and she was taking a ton of it. She was in withdrawal daily.Maybe she's still having some of that today, as she apparently still takes opiate pain meds, a reasonable dose, though possibly unnecessarily.

    There could be psychological dependence, too. Everyone knows Linda has underlying issues that began in childhood. My conclusion is that, a few years ago, the meds would start wearing off, her unhappiness with life would bubble up and magnify the physical pain she was feeling, and she'd desperately want more medication. She freaked out on here during the plume, if you want to know the dark stuff that's in her mind.

    I suspect that one reason she loudly advocates for others to get pain meds, besides the attention-seeking that involves, is a sort of empathizing with those people and maybe feeling her own emotional pain rise up when hearing the stories. I think she's assuming that others having outbursts from physical pain are like her, won’t be able to cope without heavy doses of pain meds and without meds might completely self-destruct. Even she could learn to cope - and probably should get off any remaining meds, to prevent long-term damage and tolerance. If only Linda would do the inner work that everyone wants her to do. What a waste of talent and opportunities.

    Edited by haroldcarvey, 1 year ago

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  • Paley fest!!!!

    OMG!!! I am so freakin stoked right now!! Guess what I found? A disposable Kodak camera with film in it! LOL I've been totally desperate for one to take to the Castle Paley Festival. I wan't my Pic with Stana Katic!! I'm the last one on earth not to be able to use a cell phone camera. i was even afraid to ask the sales people for fear I'd be laughed outa the store. But there it was!!! I'm over the freakin moon about it!! Crazy to get so excited over old school stuff!

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  • Message from Sabra :))

    Thanks so much Linda! I'm definitely gonna keep up with acting :) can I just say how much you inspire me? To see someone with EDS act in well known television shows is awesome. For that same person to put herself out there for all the world to see is admirable! Thanks so much for the well wishes and for continuing to inspire me to keep at it :)

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  • Re: tonight's episode: Linda -- talk about it here

    I swear to God it always blows my mind when I get recognized in public. I sometimes wonder if every Asian girl doesn't get asked if they were on Intervention. LOL I must look more like myself than I thought.

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  • Straight up from my Kate Walsh tweet back!

    Oh my Gosh!! I just met the sweetest fan in the world. And it was so wierd Cause I was still starstruck about the Kate Walsh tweet. Anyway she was giving me a starstruck look on the Trolley. When I told her it was me She went crazy. She told me she watched my episode 7 times in a row. Whenever she can't sleep. LOL. Then when we departed she had to give me a hug. I have to say it always trips me out when super attractive people get a thrill out of running into me.

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  • Doctor with EDS Advocating Linda-esque Hips Movement

    There's an informative YouTube video called "Hypermobility Form of Ehlers Danlos." It's by a female doctor with EDS. At around the 5 minute mark, she describes a method for getting the hips back in after a dislocation, and it sounds similar to what Linda was doing.

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    • By haroldcarvey
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  • Reddit

    I'm slogging through a Reddit thread with most posts directed toward an Intervention cameraman.

    One good quote not about Linda specifically...“I think it depends on the personality. Some addicts want to help people by showing how bad their life is. Others want to try and prove that they are not that bad, and still others want to put on a show. It all depends on the person."

    Linda's so erratic she does all three.

    "How was the episode with Linda? Did any crazy stuff happen that you couldn't show? I felt so bad for her brother and it really sucked how duped her mother was."

    "It was a challenge, she was always changing her mind about what was hurting her and what was not. I had to keep the mic transmitter away from her body because she said the electricity hurt her. Yeah her brother had put up with a lot. I hope that her and her family are doing well."

    He doesn't say if he was the one she attacked.

    "I sort of thought that an intervention in this case was some-what inappropriate. Yes she was abusing her prescribed medication ... but that was completely incidental. Her mental health issues were the real problem ... I guess she ended up getting the help she needed regardless.I feel like for the most part the interventions are spot on though ... do you guys often get into situations where the addict isn't really in need of treatment ... or similar situations where there are much more significant mental health issues... and the family was more or less mistaken?I guess this stuff would probably be sorted out by the time the camera crew came onto the scene ..."

    "OK firstly, you must know that I am obsessed with Intervention. I have seen nearly every episode. That being said, I am willing to claim that the best episode of all time was Linda. She was the actress from LA who took those Fentanyl lollipops and claimed she could feel energy. Do you remember this? If so, how were you not laughing when she started doing her weird stretches on the ground? Thank you so much for doing this!"

    He hasn't replied to that.

    Several other posts expressed curiosity in Linda.

    Maybe someone should post over there that Linda is here posting about her proudly screwed-up life. A&E wants traffic and that's probably why this thread isn't locked, so bring it on?

    Edited by haroldcarvey, 1 year ago

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  • Re: tonight's episode: Linda -- talk about it here

    Woke up at 6am to get to Jury duty on time. Listened to the judge lecture for an hour. Then had to postpone service as i was not about to miss out on My Castle event. Trials are 3-7 days long. The postponer was quite impressed with me as i asked about special seating. He said I could sit in Wheelchair seating. He was all proud I wasn't trying to get excused from duty like everyone else there just cause I was handicapped.

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  • More Muddled Thinking

    On cue, Linda pops up to report praise of her. In a way that produces the opposite.

    Yeah, reporting on time (even at an awful hour) and not trying to weasel out by overstating disability are right behaviors.

    But passing up a chance to earn hundreds of dollars in order to goof off at some minor event is not appropriate. And the ability to do jury duty with some accomodation (for the hips) indicates Linda could be working. (Many people with EDS would love to have that chance.)

    But she's probably not trying to work, because she'd rather goof off. If the state of California figures that out someday....

    Granted, most people are rejected for serving on trials for some reason, and I suppose someone eventually would figure out that it's Linda from Intervention and disqualify her due to the various problems that would cause.

    I don't know if pain meds Linda takes now affect her thinking, but the extreme doses she used to take could still be affecting her, judging by her ongoing behavior.

    Edited by haroldcarvey, 1 year ago

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  • one of my fav post from a new member

     
    Omg jennifer...I could have written this. I've been referred to psych SO many times bc I'm horribly depressed about being in pain ALL the time and unable to get help! I've explained that this is the ONLY thing in my life that's depressing m...e and if you'd just treat the pain the depression would vanish...ESPECIALLY when I was undiagnosed, they wouldn't hear it...like the longer it took them to scratch their heads the more I was to blame...reached a point where every time I get my hopes up REAL high about a dr, wait months, pay tons of $, and they basically shrug their shoulders and refuse to help, it would crush me...my husband was talking me out of suicide at least once a month. .then of course the more anxious/depressed/desperate you are, the more that looks like a drug seeker!! I don't have an answer, please tell me if you find one. BATTLING for pain control is exhausting demeaning and the most hopeless feeling I know.. I feel for you and am so sorry ♥
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  • Re: tonight's episode: Linda -- talk about it here

    I think the problems are words like "crazy" and probably unverifiable claims about behavior on another site. I'd prefer company in fighting the good fight.

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  • Re: one of my fav post from a new member

    "Fav" is not the word I would use to describe someone being in that situation.

    Anyway, as shown in this thread, people easily can believe themselves to be okay psychologically when all evidence says otherwise. EDS patients often are predisposed to mental health problems. Physical pain or limitations can make anyone more depressed or anxious, but that usually will not turn a stable person into a wreck.

    Any doctor who sees a frantic patient, especially a new patient, who has a murky condition and wants meds should worry what that person might do with the meds. Referring to a psychiatrist can be a cover-your-[bleep] method and a way of testing patient compliance (which, in my experience, doctors do prior to offering risky treatments).

    But it could be helpful. Because probably Linda was not receiving ongoing mental help during those years of opiate misuse; and if she had been, she'd likely have learned some psychological coping mechanisms to lessen the impulse for pain meds. Plus, a psychiatrist can evaluate a patient and then vouch for him or her to the other doctor.

    Another thing, which I assume didn't happen in Linda's case, is that it can help if family goes with the patient to the doctor. Then the doctor and the family might trust the patient more.

    Edited by haroldcarvey, 1 year ago

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  • Castle event

    I'm just posting this as a teaching moment for EDS pain. obviously everyone knows how Badly i wanted to meet the Castle cast. Well got totally suckerpunched cause 5 minutes after arriving in La my fingers started burning /hurting at a scale of 10 and DODO head me forgot to bring pain meds. But they were hurting so Badly I was ready to hop back on the bus and go home just to make it stop. But I jus...t hoped and prayed that by the time I got to Beverly Hills it rwould stop. But it really wasn't that much better. Luckily they were serving Drinks at the festival and it helped a bit. So I had to sit through the whole event in miserable pain. Of course Nathan Fillion and Stana Katic were a huge great Distraction so I was able to forget about it once in a while. But man alive how EDS pain can disrupt life!! You know I'm looking at it this way.
    Whenever my fingers start hurting like that again It will remind me of seeing the Castle Cast live!!

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  • More Teachable Moments

    Well, until the last sentence, the story sounds fairly sane and refreshingly free of boasting. Of course taking a long probably uncomfortable trip apparently alone to attend a dull-seeming event with the cast of a mediocre TV show suggests deeper issues. (That makes going to a Star Trek convention seem sensible by comparison.)

    Beyond that, the teachable moments:

    1) I don't like references to using alcohol to try to relieve pain. Even though it was offered and I believe not used to excess. Because that's probably led some people to being on Intervention. I really don't know if it is medically permissible for someone to drink at all while opiods are in the system at low amounts. In an emergency, why not just buy or 'bum' an OTC pain pill?

    2. Burning pain in the fingers not from hand usage? Then it probably should be examined closely by a specialist. Maybe nerve meds could relieve some of it. Again, opiods for that is not appropriate.

    3. A 10 on the pain scale would involve crying and probably screaming and surely complete inability to enjoy the surroundings. That wasn't even a 9. Exaggerations like that discredit people and make medical professionals more distrustful toward all.

    4. Posting about able-bodied activities (the ability to tolerate that travel) while supposedly "handicapped" would raise suspicion with California State Disability .

    Edited by haroldcarvey, 1 year ago

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  • Susan Sullivan at Paley Fest!

    You know It took me a while to figure this one out. But when Susan Sullivan Handed me back her autograph she gave me a rather confused, odd, oh it's you look?..... I thought it was wierd at first maybe she looks at everyone like that? but I now realize she must have Recognized me from The show!! LOL

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  • Storing Cells in Bras?

    I was totally cringing watching this girl store her cell in her Bra!!! If you do this please stop. And people wonder where breast cancer comes from???

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  • Re: Susan Sullivan at Paley Fest!

    Maybe she did. Because her bio lists her as the daughter of an alcoholic, meaning she probably is interested in programs like Intervention. However, recognition is not the same thing as liking. That could have been an expression of worry. Celebrities are especially wary of psychologically unwell people. The post itself indicates there are problems to work on.

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