After graduating college, Linda found success working as an extra in Hollywood, achieving the glamorous life she always wanted. But her dreams died when she came down with Ehlers-Danlos Syndrome, a rare disorder characterized by joint dislocations. Linda started taking fentanyl, a painkiller 100 times stronger than morphine. As her painkiller use escalated, she claimed that different sources were causing her pain, including electricity, energy, colors, and even specific people. Despite Linda's wild claims, her mother clings to the belief that Linda's pain is real and she must do everything to help her, including depleting the family's savings and sending her son to be Linda's caretaker.
Missed the episode? Watch it here.
Edited by aetv_dlg, 4 years ago
Edited by haroldcarvey, 1 year ago
I agree this would have been interestin
I liked how Ken Seely treated Brooke... and Linda for that matter. Wish he was still on the show. Ken, wherever you are hope things are good and that life is treating you well!
Edited by jade_s, 1 year ago
No, the producers still could have portrayed Linda inaccurately and did. Because they relied on biased third-parties, her family (experts at denial) and the doctor who never personally examined her. It simply does not make sense for a person to make up having Ehlers-Danlos Syndrome.
That said, her exaggerating pain and attributing pain to things that can't cause pain did not help. Linda was there mainly for prescription medication abuse and craziness, not EDS. Her case, when not complicated by overmedication, probably is mild. Ehlers-Danlos Syndrome can be mild (if EDS usually were very disabling, it would be extremely rare). Even in Linda's Facebook group, there probably are many members with serious health issues who yet can move around well at times. I've met people with EDS online and offline - I know what I'm talking about.
A probable reasons posts started being deleted regularly is repetition of dubious assertions meant to sting. That stuff gets aggravating to read.
Edited by haroldcarvey, 1 year ago
I was watching E! News (which I rarely do) and Googling Guiliana's background info a few hours earlier, but I didn't see the segment. I'd heard about Greg Page's condition, though. I guess it's about him getting it under control well enough to rejoin the group.
About a month ago, The Doctors mentioned "orthostatic intolerance" or "orthostatic hypotension" (re blood pressure), but I was annoyed because as usual underlying possibilities weren't mentioned.I think it's at least a third of people with EDS who have the problem. I have not heard of doctors rejecting patients as drug seekers for it, not in the "You're here to get meds to abuse" way. But as I've said before, opiods lower blood pressure, which is another reason to get off the "Just take pain meds" idea that you shouldn't be pushing.
Edited by haroldcarvey, 1 year ago
It makes much more sense seeing as people sense that Cells can cause brain tumors in a few years. But can't see the brain damage that it is doing to brains that are still attempting
I put it all together today, after a news story about genetic mutations being suspected in autism.
Cell phones and genetic damage - http://www
Many other things can cause genetic damage.
Meanwhile,
Edited by haroldcarvey, 1 year ago
You know I was writing this to a friend of mine as she has been absent from my EDS board for a while and I NOTICED that my board just hasn't been the same without her of late. She messaged me to tell me she had been attacked on some other boards and was thinking about giving up [posting all together. i wrote this back to her and realized... Dang I need to take my own advice!!
Hey Sweetie! I really miss you! the board is not the same without you! the info you give out is phenomenal and everyone can relate to you. Don't listen to the negativity. That crap is limiting you from being your best. you have the world to offer to other EDSers. Don't let some ignorant fools get u down or keep u from your love. That kind of ignorance is hurting all of us!!!! Me the most!! At least stay around my board. You will never be attacked there. Your too precious for me to allow it. I've actually been kinda down with your absence. the board is not as good without you! please come back and never listen to those insane people ever again!! I love you and u are invaluable!! Sorry about ur pain levels :(
much love!!!! Linda :)
That sounds rather eloquent, but it has minimal relevance. Plus, it supports what I've been saying, about Linda knowing how to wear a mask that people like (which is manipulative and ineffective in the long run) and also that she posts here due to unmet needs.
Obviously one issue is too much free time. Instead of goofing off, get a part-time job, even if it's just volunteer work. And there of course is inner work to do, and not with a therapist in the role of friend (therapists are guides and critics if necessary, not friends). Make friends elsewhere. Real friends, not cyber-friends, not Intervention failures/bad influences. (Real friends too sometimes will serve as critics, when appropriate.) It's not easy to make real friends, but it's doable. If able to make an impression that is genuine and without most of the nonsense so obvious in the episode. Or otherwise it's too shallow or too aggravating for the other person (e.g., me). Let the good parts shine and stop being a screw-up. Everyone is waiting to see progress.
Edited by haroldcarvey, 1 year ago
I love the water but the water doesn't like me. I am allergic to the chemicals in the water and getting in and out of the pool is almost impossible to not dislocate my knees. Then being in the water makes my joints much looser. It is terrible........ My response!!!
© 1998-2011, A&E Television Networks, LLC. All Rights Reserved.
