After graduating college, Linda found success working as an extra in Hollywood, achieving the glamorous life she always wanted. But her dreams died when she came down with Ehlers-Danlos Syndrome, a rare disorder characterized by joint dislocations. Linda started taking fentanyl, a painkiller 100 times stronger than morphine. As her painkiller use escalated, she claimed that different sources were causing her pain, including electricity, energy, colors, and even specific people. Despite Linda's wild claims, her mother clings to the belief that Linda's pain is real and she must do everything to help her, including depleting the family's savings and sending her son to be Linda's caretaker.
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Edited by aetv_dlg, 4 years ago
I've heard of that happening,
Edited by haroldcarvey, 2 years ago
This is completely
Hi Linda, Jeff Travis commented on your status. Jeff wrote: "Most physicians
Wow a pain Med expert and Roxette Fanatic wrapped up in one person? Can this be for real?
Most pain pts under the care of a doctor only get enough meds to cover the pain they are currently experiencing. IE. I have been hospitalized enough times and met many pts who regularly take for instance the duragesic patch for cancer pain yet they have a colon blockage or their appendix is inflamed. They can feel that pain because their pain meds does not cover both sources of pain. I've sat in on enough md visits and heard the doctor tell those pts don't worry I will keep you on your regular meds and give you additional coverage for the post surgical pain. It is a HUGE myth that pain meds takes pain away completely. I can CERTAINLY attest to that! The only time in 10 yrs of extreme pain that I had sufficient coverage was When I took Actiq and IM Demerol Simultaneously. I was having severe stomach problems. People with EDS Have multiple sources of pain. When My fingers were burning and my hips were messed up the meds would only go to one place. I did not have a choice which area would be covered. It was usually the area that hurt more. So I was ALWAYS left with at least multiple sites hurting.
Real addicts aren't known for taking good care of themselves, so even if they notice symptoms of health issues, they're relatively unlikely to seek help. That's what Dr. Drew insinuated about Jeff Conaway's death.
I can attest to what Linda claims about meds not eliminating all pain (not with severe or widespread pain, anyway) and there being different kinds of pain (with different meds for the types). Still it's possible for pain meds to cover up problems. That's one reason why doctors are unlikely to prescribe strong meds for pain of uncertain origin. (Often undiagnosed EDS patients will run into that.) Another reason, of course, is the possibility that it's a ruse to score the meds. Then there's the "Do no harm" principle, because pain meds can directly do harm. (Linda, tell the whole truth. You don't want people to destroy themselves with pain meds, do you? It often takes a dangerous amount of pain meds to greatly reduce pain in Ehlers-Danlos Syndrome, for example. Besides, nobody will 100% believe that you handled your care perfectly.)
And no, I don't think comments should be re-tweeted here attached to user IDs unless permission is given first.
Edited by haroldcarvey, 2 years ago
http://www
I consider intractabl
I forgot when I learned this either in Grad school maybe college maybe HS. But when we were studying the brain they showed us that the smaller the body part, like your hands and fingers the more area of the brain is covered containing pain receptors so that's why we feel more pain for instance if we got a paper cut. . the larger the body part like a leg or arm a smaller area of the brain is covered. So given this info, i don't think it's a theory, it would be very telling how the body would respond to pain killers. I would imagine for Finger pain a higher quantity of pain meds would be necessary because there are so many more receptors. This is quite interesting because though I had already had shoulders, hips, knees, elbows dislocate it was not until My fingers went out that I needed narcotics. to this day for every large joint, like a shoulder or elbow or knee I have never needed Narcotics for that stuff. It's usually just for fingers and hips. I imagine because it's come out so often and it's such a main joint that heals so slowly. because so much weight is on it all the time.
My Parents just left this morning :(((( It was a fantastic visit!! Mostly because it ws the first time in 10 yrs we got to spend anytime together that I was not in excruciati
To deny a a Criminal Pain meds is it inhumane or simply a Judgement call? That was actually a quote from Derek Shephard but it was so awful to hear. ER doctors do it everyday to innocent victims because they believe people are drug seeking. Treating pain pts like criminals.
That's called sadism. Maybe cost-cutti
There are so many better causes to push, such as better training for health care profession
Edited by haroldcarvey, 2 years ago
It kills me that people think that pain experts know more about pain than actual pain patients!! How could that be remotely true? That's why so many Doctors came up to me to ask my opinion about giving pain meds to their EDS pts. And that joke of a EDS MD Weinberger went on National TV and said what he said. No one knows anything about pain till they have had it themselves for an extended period of time. They do not have a right to speak unless they have actually been there. You know what made me kinda sad yesterday it was Wendy's Birthday and she had to celebrate it in pain. Thank God that she is use to it having been in pain since First Grade. But It reminded me of how I was unable to even go out to dinner to celebrate my birthday for the last 10 yrs. One yr I managed to sit through dinner by injecting the lollipops in the restaurant Bathroom. That's what led George to believe I had a drug problem. It's so crazy How off base people could be. It enraged me that after that year my family would not let me inject so that I could go out to dinner again. I ended up having to leave the restaurant cause the pain was too outstanding. Seriously people you guys do not know how life bad can get. That's why this visit was just so sweet. I don't think there were happier people in this world than me and my family this week. To see me practically pain free and for me to actually be pain free around them was amazing. I can honestly say it was probably the happiest day in my parents life since my birth. Even better not a single phone rang in the restaurant the first night. Hmmmmm........ And even better this say s alot about Sam And I's Relationship. It's so awesome that we have the same sense of humor and can just laugh and get along without a monkey on our back. :))))))
Not every expert is an expert. I don't know of any top EDS docs on the West Coast. No wonder doctors could go to a local conference
Edited by haroldcarvey, 2 years ago
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