http://community.aetv.com/service/displayKickPlace.kickAction?u=18522776&as=119137 Most Recent Submissions from linkizzy77 on AETV Community Sun, 14 Apr 2013 01:40:29 GMT Sun, 14 Apr 2013 01:40:29 GMT RitaWiseman@aol.com (aetvAdmin) RitaWiseman@aol.com (aetvAdmin) KickApps Feed Builder 2013-04-14T01:40:29Z 78 http://community.aetv.com/service/searchEverything.kickAction?as=119137&includeVideo=on&includeAudio=on&includePhoto=on&includeBlog=on&sortType=recent 0 http://community.aetv.com/_EDS-Vs-Cancer/blog/6520050/119137.html Someone shared this And I just had to status it! LMAO! "Omg yes when people compare my health state to cancer and tell me how much worse it could be... WHY should I judge my quality of life in comparison to living with cancer????!!! AND BTW EDS is never cured! It gets progressively worse every year, but thanks for trying to cheer me up Aholes! (Speaking to said people)"In turn someone else wrote.......I had a so called friend ranting on my page a couple of weeks ago telling me I should stop moaning that I was ill, after all I didn't have anything serious like cancer! I think what gets me and what the difference is is down to one word....hope. With eds there is no hope. There is no chance at all that it will be cured or get better. I have it but worse so do all 3 of my kids. Eds can kill you, its agony, it strips you of your dignity, and because people don't understand it you don't get the help you need. I had treatment for cervical cancer for 3 years and that was way easier than this! I always believed I'd be cured and never lost hope. And that hope is what you don't get with eds. XxxI almost feel guilty when I say it but its true. Life with no hope of a day without pain is very disheartening. You can deal with amazing amounts of pain if you have the hope that one day it will go away. Take away that hope and where does that leave you? I don't think people understand that. I think that is in a way a defence mechanism for them because imagining never ending pain is too challenging. Thats their problem not ours. everyone knows what cancer is, they see it, they understand it. Billions of £/$ are spent pulling at peoples heart strings so they will open their purses. Eds isn't glamorous! People want to help people with cancer, they have compassion and sympathy. We don't get that. If we are lucky they listen, nod and maybe try to get it....more likely you'll get told you are faking it and need to pull yourself together. Its so wrong!Again not my words but What I have been thinking for Years! Thanks Lindaxoxo Someone shared this And I just had to status it! LMAO! "Omg yes when people compare my health state to cancer and tell me how much worse it could be... WHY should I judge my quality of life in comparison to living with cancer????!!! AND BTW EDS is never cured! It gets progressively worse every year, but thanks for trying to cheer me up Aholes! (Speaking to said people)"In turn someone else wrote.......I had a so called friend ranting on my page a couple of weeks ago telling me I should stop moaning that I was ill, after all I didn't have anything serious like cancer! I think what gets me and what the difference is is down to one word....hope. With eds there is no hope. There is no chance at all that it will be cured or get better. I have it but worse so do all 3 of my kids. Eds can kill you, its agony, it strips you of your dignity, and because people don't understand it you don't get the help you need. I had treatment for cervical cancer for 3 years and that was way easier than this! I always believed I'd be cured and never lost hope. And that hope is what you don't get with eds. XxxI almost feel guilty when I say it but its true. Life with no hope of a day without pain is very disheartening. You can deal with amazing amounts of pain if you have the hope that one day it will go away. Take away that hope and where does that leave you? I don't think people understand that. I think that is in a way a defence mechanism for them because imagining never ending pain is too challenging. Thats their problem not ours. everyone knows what cancer is, they see it, they understand it. Billions of £/$ are spent pulling at peoples heart strings so they will open their purses. Eds isn't glamorous! People want to help people with cancer, they have compassion and sympathy. We don't get that. If we are lucky they listen, nod and maybe try to get it....more likely you'll get told you are faking it and need to pull yourself together. Its so wrong!Again not my words but What I have been thinking for Years! Thanks Lindaxoxo Sun, 14 Apr 2013 01:40:29 GMT http://community.aetv.com/_EDS-Vs-Cancer/blog/6520050/119137.html linkizzy77 2013-04-14T01:40:29Z AETV Community Someone shared this And I just had to status it! LMAO! "Omg yes when people compare my health state to cancer and tell me how much worse it could be... WHY should I judge my quality of life in comparison to living with cancer????!!! AND BTW EDS is never cured! It gets progressively worse every year, but thanks for trying to cheer me up Aholes! (Speaking to said people)"In turn someone else wrote.......I had a so called friend ranting on my page a couple of weeks ago telling me I should stop moaning that I was ill, after all I didn't have anything serious like cancer! I think what gets me and what the difference is is down to one word....hope. With eds there is no hope. There is no chance at all that it will be cured or get better. I have it but worse so do all 3 of my kids. Eds can kill you, its agony, it strips you of your dignity, and because people don't understand it you don't get the help you need. I had treatment for cervical cancer for 3 years and that was way easier than this! I always believed I'd be cured and never lost hope. And that hope is what you don't get with eds. XxxI almost feel guilty when I say it but its true. Life with no hope of a day without pain is very disheartening. You can deal with amazing amounts of pain if you have the hope that one day it will go away. Take away that hope and where does that leave you? I don't think people understand that. I think that is in a way a defence mechanism for them because imagining never ending pain is too challenging. Thats their problem not ours. everyone knows what cancer is, they see it, they understand it. Billions of £/$ are spent pulling at peoples heart strings so they will open their purses. Eds isn't glamorous! People want to help people with cancer, they have compassion and sympathy. We don't get that. If we are lucky they listen, nod and maybe try to get it....more likely you'll get told you are faking it and need to pull yourself together. Its so wrong!Again not my words but What I have been thinking for Years! Thanks Lindaxoxo nonadult false EDS Vs Cancer text blog 166 0 0.0 http://community.aetv.com/service/displayKickPlace.kickAction?u=18522776&as=119137 http://media.kickstatic.com/kickapps/images/user/defaultImage_160x120_A.jpg false 0 0 6520050 18522776 Member 0 http://community.aetv.com/_High-Dosages-of-Pain-Meds-does-not-No-Pain/blog/6513379/119137.html Hey Silly's  I wanted to respond to your last comment. The moral of the story to my posting that is that people, the general public per say,Seems to think that just becasue we are on high quantities of narcotics that we are no longer in pain. NOT TRUE!!! A great example I remember is my brother saying something about my being on end stage breakthrough pain meds. Thus were the lollipops. And having no clue of my suffering. The public is so not educated about the depths of severe pain. I'm looking at Robin Roberts story right now. She is actually so fortunate to have an illness with a cure. She suffered and it is for the most part over. We with EDS suffer with Excruciating pain Daily with no proof that it exists. therefore it is so difficult for us to get proper treatment. I wasn't going to say anything about ur advice about going the ER. But those of us with EDS cannot do that. They do not believe us nor do many pain doctors. only a Handful of the EDS Researchers at NIH understand the Depths of our suffering. Because they have seen so many patients all reporting the same issues. Here in San Diego there is no doctor that understands or has any knowledge of EDS. Very unfortunate seeing that we are in a fairly large city. I just think it is important for the public to know the the awful plight we are in. Its sad but perhaps the only way for people to get it is to be constantly Tased by a taser. Take some narcotics and maybe than they will understand. I appreciate u sharing ur thoughts. It was eye opening to find out that that was how that post was being perceived. Hey Silly's  I wanted to respond to your last comment. The moral of the story to my posting that is that people, the general public per say,Seems to think that just becasue we are on high quantities of narcotics that we are no longer in pain. NOT TRUE!!! A great example I remember is my brother saying something about my being on end stage breakthrough pain meds. Thus were the lollipops. And having no clue of my suffering. The public is so not educated about the depths of severe pain. I'm looking at Robin Roberts story right now. She is actually so fortunate to have an illness with a cure. She suffered and it is for the most part over. We with EDS suffer with Excruciating pain Daily with no proof that it exists. therefore it is so difficult for us to get proper treatment. I wasn't going to say anything about ur advice about going the ER. But those of us with EDS cannot do that. They do not believe us nor do many pain doctors. only a Handful of the EDS Researchers at NIH understand the Depths of our suffering. Because they have seen so many patients all reporting the same issues. Here in San Diego there is no doctor that understands or has any knowledge of EDS. Very unfortunate seeing that we are in a fairly large city. I just think it is important for the public to know the the awful plight we are in. Its sad but perhaps the only way for people to get it is to be constantly Tased by a taser. Take some narcotics and maybe than they will understand. I appreciate u sharing ur thoughts. It was eye opening to find out that that was how that post was being perceived. Sat, 23 Feb 2013 06:49:02 GMT http://community.aetv.com/_High-Dosages-of-Pain-Meds-does-not-No-Pain/blog/6513379/119137.html linkizzy77 2013-02-23T06:49:02Z AETV Community Hey Silly's  I wanted to respond to your last comment. The moral of the story to my posting that is that people, the general public per say,Seems to think that just becasue we are on high quantities of narcotics that we are no longer in pain. NOT TRUE!!! A great example I remember is my brother saying something about my being on end stage breakthrough pain meds. Thus were the lollipops. And having no clue of my suffering. The public is so not educated about the depths of severe pain. I'm looking at Robin Roberts story right now. She is actually so fortunate to have an illness with a cure. She suffered and it is for the most part over. We with EDS suffer with Excruciating pain Daily with no proof that it exists. therefore it is so difficult for us to get proper treatment. I wasn't going to say anything about ur advice about going the ER. But those of us with EDS cannot do that. They do not believe us nor do many pain doctors. only a Handful of the EDS Researchers at NIH understand the Depths of our suffering. Because they have seen so many patients all reporting the same issues. Here in San Diego there is no doctor that understands or has any knowledge of EDS. Very unfortunate seeing that we are in a fairly large city. I just think it is important for the public to know the the awful plight we are in. Its sad but perhaps the only way for people to get it is to be constantly Tased by a taser. Take some narcotics and maybe than they will understand. I appreciate u sharing ur thoughts. It was eye opening to find out that that was how that post was being perceived. nonadult false High Dosages of Pain Meds does not= No Pain text blog 246 0 0.0 http://community.aetv.com/service/displayKickPlace.kickAction?u=18522776&as=119137 http://media.kickstatic.com/kickapps/images/user/defaultImage_160x120_B.jpg false 0 0 6513379 18522776 Member 0 http://community.aetv.com/_EDS-Pain-and-Suicide/blog/6512779/119137.html Recently there was a very intense and helpful discussion on my board about EDS pain and suicide. It was nice to know We are not alone in our feelings. I really feel the general public is not educated enough about how intense pain can become. About how Undertreated our pain truly is. How dangerous not prescribing enough painkillers really is. It is deadly. I believe many in the general public think that just because one is prescribed narcotics we are not in pain.  NOT TRUE! I really hope someday soon Doctors will realize we are not Drug seekers and Require adequate pain controll. And will help us. Physical pain is the leading cause of suicide...... I just felt I needed to share some quotes......."I'm gonna be straight up honest here. I've been in chronic pain for 8 years now, and I'm completely sick of it. I've been collapsey for 6. I've been suicidal every single day for the last 5 years because the pain is so excruciating daily that I can't cope"..... 16 yrs old."Adequate pain control makes a world of difference! And far too few doctors are willing to prescribe and manage what we need.""I think that in this case self-euthanasia has in part responsibility laid squarely on the lap of drs who do not provide appropriate care. it is wrong that a diagnosis must be definitively made before paliatory care is provided. in many cases, deadly wrong""Many of us have tried it or thought about...or still do. The pain and the way people treat us including drs, family etc is very hard to handle." now I see why Linda Li included me :) This is a tough subject, but one that we all deal with. And one that nobody likes to talk about. I'm happy to see how open everyone is being with one another on here "XXX" I agree that you need to talk to your doctor about getting some better pain control. You have to be honest with him/her... that is the first step. It is ok to say "I take my pain medication as you prescribe, but I am still hurting. Is there something else we can try?" Wanting to die is, I believe, a natural response to being in too much pain. No one wants to live like that. At the same time, it is absolutely nothing to be ashamed of. Recently there was a very intense and helpful discussion on my board about EDS pain and suicide. It was nice to know We are not alone in our feelings. I really feel the general public is not educated enough about how intense pain can become. About how Undertreated our pain truly is. How dangerous not prescribing enough painkillers really is. It is deadly. I believe many in the general public think that just because one is prescribed narcotics we are not in pain.  NOT TRUE! I really hope someday soon Doctors will realize we are not Drug seekers and Require adequate pain controll. And will help us. Physical pain is the leading cause of suicide...... I just felt I needed to share some quotes......."I'm gonna be straight up honest here. I've been in chronic pain for 8 years now, and I'm completely sick of it. I've been collapsey for 6. I've been suicidal every single day for the last 5 years because the pain is so excruciating daily that I can't cope"..... 16 yrs old."Adequate pain control makes a world of difference! And far too few doctors are willing to prescribe and manage what we need.""I think that in this case self-euthanasia has in part responsibility laid squarely on the lap of drs who do not provide appropriate care. it is wrong that a diagnosis must be definitively made before paliatory care is provided. in many cases, deadly wrong""Many of us have tried it or thought about...or still do. The pain and the way people treat us including drs, family etc is very hard to handle." now I see why Linda Li included me :) This is a tough subject, but one that we all deal with. And one that nobody likes to talk about. I'm happy to see how open everyone is being with one another on here "XXX" I agree that you need to talk to your doctor about getting some better pain control. You have to be honest with him/her... that is the first step. It is ok to say "I take my pain medication as you prescribe, but I am still hurting. Is there something else we can try?" Wanting to die is, I believe, a natural response to being in too much pain. No one wants to live like that. At the same time, it is absolutely nothing to be ashamed of. Wed, 20 Feb 2013 06:59:39 GMT http://community.aetv.com/_EDS-Pain-and-Suicide/blog/6512779/119137.html linkizzy77 2013-02-20T06:59:39Z AETV Community Recently there was a very intense and helpful discussion on my board about EDS pain and suicide. It was nice to know We are not alone in our feelings. I really feel the general public is not educated enough about how intense pain can become. About how Undertreated our pain truly is. How dangerous not prescribing enough painkillers really is. It is deadly. I believe many in the general public think that just because one is prescribed narcotics we are not in pain.  NOT TRUE! I really hope someday soon Doctors will realize we are not Drug seekers and Require adequate pain controll. And will help us. Physical pain is the leading cause of suicide...... I just felt I needed to share some quotes......."I'm gonna be straight up honest here. I've been in chronic pain for 8 years now, and I'm completely sick of it. I've been collapsey for 6. I've been suicidal every single day for the last 5 years because the pain is so excruciating daily that I can't cope"..... 16 yrs old."Adequate pain control makes a world of difference! And far too few doctors are willing to prescribe and manage what we need.""I think that in this case self-euthanasia has in part responsibility laid squarely on the lap of drs who do not provide appropriate care. it is wrong that a diagnosis must be definitively made before paliatory care is provided. in many cases, deadly wrong""Many of us have tried it or thought about...or still do. The pain and the way people treat us including drs, family etc is very hard to handle." now I see why Linda Li included me :) This is a tough subject, but one that we all deal with. And one that nobody likes to talk about. I'm happy to see how open everyone is being with one another on here "XXX" I agree that you need to talk to your doctor about getting some better pain control. You have to be honest with him/her... that is the first step. It is ok to say "I take my pain medication as you prescribe, but I am still hurting. Is there something else we can try?" Wanting to die is, I believe, a natural response to being in too much pain. No one wants to live like that. At the same time, it is absolutely nothing to be ashamed of. nonadult false EDS Pain and Suicide text blog 278 0 0.0 http://community.aetv.com/service/displayKickPlace.kickAction?u=18522776&as=119137 http://media.kickstatic.com/kickapps/images/user/defaultImage_160x120_A.jpg false 1 0 6512779 18522776 Member 0 http://community.aetv.com/_Linda-meets-Roxette-on-CBS/blog/6383843/119137.html I turn on the CBS morning show and am Shocked to See Marie From Roxette being interviewed and a second later they show me Meeting Marie!!! Holy crap!! You know this would have been meaningful to me without having had to go through what I did the last 10 yrs. But Wow it is all soooo much sweeter!! Crazy to know CBS has my whole Convo with Marie documented!!! Who the heck has their #1 Bucket list documented on National TV!!!    http://youtu.be/SWSzU9ntwIk   I'm at 3:17!!!!!  Crazy how the two of us have both suffered so much at around the same time. Both kinda recovered at the same time and are literally standing next to each other on National TV!! its a Miracle!!! I thought it was crazy I even won the backstage pass but to have gotten on TV while meeting my all time idol!!! Who does this happen to???  me??? Really??? I turn on the CBS morning show and am Shocked to See Marie From Roxette being interviewed and a second later they show me Meeting Marie!!! Holy crap!! You know this would have been meaningful to me without having had to go through what I did the last 10 yrs. But Wow it is all soooo much sweeter!! Crazy to know CBS has my whole Convo with Marie documented!!! Who the heck has their #1 Bucket list documented on National TV!!!    http://youtu.be/SWSzU9ntwIk   I'm at 3:17!!!!!  Crazy how the two of us have both suffered so much at around the same time. Both kinda recovered at the same time and are literally standing next to each other on National TV!! its a Miracle!!! I thought it was crazy I even won the backstage pass but to have gotten on TV while meeting my all time idol!!! Who does this happen to???  me??? Really??? Sat, 06 Oct 2012 02:45:16 GMT http://community.aetv.com/_Linda-meets-Roxette-on-CBS/blog/6383843/119137.html linkizzy77 2012-10-06T02:45:16Z AETV Community I turn on the CBS morning show and am Shocked to See Marie From Roxette being interviewed and a second later they show me Meeting Marie!!! Holy crap!! You know this would have been meaningful to me without having had to go through what I did the last 10 yrs. But Wow it is all soooo much sweeter!! Crazy to know CBS has my whole Convo with Marie documented!!! Who the heck has their #1 Bucket list documented on National TV!!!    http://youtu.be/SWSzU9ntwIk   I'm at 3:17!!!!!  Crazy how the two of us have both suffered so much at around the same time. Both kinda recovered at the same time and are literally standing next to each other on National TV!! its a Miracle!!! I thought it was crazy I even won the backstage pass but to have gotten on TV while meeting my all time idol!!! Who does this happen to???  me??? Really??? nonadult false Linda meets Roxette on CBS!!! text blog 673 0 0.0 http://community.aetv.com/service/displayKickPlace.kickAction?u=18522776&as=119137 http://media.kickstatic.com/kickapps/images/user/defaultImage_160x120_D.jpg false 0 0 6383843 18522776 Member 0 http://community.aetv.com/_EDS-accused-of-too-much-pain-meds/blog/6253121/119137.html Someone shared again how their MD complains that they are already taking too many Pain meds when they are still in pain. This issue drives me crazy So I have to share my response....."I'm so sorry! I hate hearing that. The battle for us EDSer's to get proper pain meds just seems neverending.... Wish we could enact a law. If only all doctors realized just how painful EDS is. I wish I could come up with a good comeback. It drives me crazy to have to hear a comment like that when ur still dying of pain. Ugh...... Stay strong stand ur ground and tell them how it is. That if they were in ur body they would not make such an insensitive comment." Someone shared again how their MD complains that they are already taking too many Pain meds when they are still in pain. This issue drives me crazy So I have to share my response....."I'm so sorry! I hate hearing that. The battle for us EDSer's to get proper pain meds just seems neverending.... Wish we could enact a law. If only all doctors realized just how painful EDS is. I wish I could come up with a good comeback. It drives me crazy to have to hear a comment like that when ur still dying of pain. Ugh...... Stay strong stand ur ground and tell them how it is. That if they were in ur body they would not make such an insensitive comment." Wed, 01 Aug 2012 10:18:17 GMT http://community.aetv.com/_EDS-accused-of-too-much-pain-meds/blog/6253121/119137.html linkizzy77 2012-08-01T10:18:17Z AETV Community Someone shared again how their MD complains that they are already taking too many Pain meds when they are still in pain. This issue drives me crazy So I have to share my response....."I'm so sorry! I hate hearing that. The battle for us EDSer's to get proper pain meds just seems neverending.... Wish we could enact a law. If only all doctors realized just how painful EDS is. I wish I could come up with a good comeback. It drives me crazy to have to hear a comment like that when ur still dying of pain. Ugh...... Stay strong stand ur ground and tell them how it is. That if they were in ur body they would not make such an insensitive comment." nonadult false EDS accused of too much pain meds text blog 733 0 0.0 http://community.aetv.com/service/displayKickPlace.kickAction?u=18522776&as=119137 http://media.kickstatic.com/kickapps/images/user/defaultImage_160x120_B.jpg false 1 0 6253121 18522776 Member 0 http://community.aetv.com/_Pain-Med-Injustices/blog/6203687/119137.html I just need to comment on the previous 3 posts I posted. I just cannot get over the imbalance of power going on here!!! Meredith has severe pain in her shoulders but can still to care for 2 yr old twins. and her doc has decided to give her a reasonable dosage of pain meds. beyond 3x Cheryl's doc is willing to give her and Cheryl is unable to even bathe independently. HOW ARE THESE PAIN DOCS coming to their decisions???? How is this even a standard of care for Pain PTS!! Can everyone see why I am so Passionate about my Cause??? How these docs come to their decisions? I think some Educating of Pain Docs is mandatory. Can u believe this is happening in this day and age?  I just need to comment on the previous 3 posts I posted. I just cannot get over the imbalance of power going on here!!! Meredith has severe pain in her shoulders but can still to care for 2 yr old twins. and her doc has decided to give her a reasonable dosage of pain meds. beyond 3x Cheryl's doc is willing to give her and Cheryl is unable to even bathe independently. HOW ARE THESE PAIN DOCS coming to their decisions???? How is this even a standard of care for Pain PTS!! Can everyone see why I am so Passionate about my Cause??? How these docs come to their decisions? I think some Educating of Pain Docs is mandatory. Can u believe this is happening in this day and age?  Sat, 30 Jun 2012 23:12:31 GMT http://community.aetv.com/_Pain-Med-Injustices/blog/6203687/119137.html linkizzy77 2012-06-30T23:12:31Z AETV Community I just need to comment on the previous 3 posts I posted. I just cannot get over the imbalance of power going on here!!! Meredith has severe pain in her shoulders but can still to care for 2 yr old twins. and her doc has decided to give her a reasonable dosage of pain meds. beyond 3x Cheryl's doc is willing to give her and Cheryl is unable to even bathe independently. HOW ARE THESE PAIN DOCS coming to their decisions???? How is this even a standard of care for Pain PTS!! Can everyone see why I am so Passionate about my Cause??? How these docs come to their decisions? I think some Educating of Pain Docs is mandatory. Can u believe this is happening in this day and age?  nonadult false Pain Med Injustices text blog 538 0 0.0 http://community.aetv.com/service/displayKickPlace.kickAction?u=18522776&as=119137 http://media.kickstatic.com/kickapps/images/user/defaultImage_160x120_D.jpg false 0 0 6203687 18522776 Member 0 http://community.aetv.com/_Pain-med-Myths/blog/4237861/119137.html Most pain pts under the care of a doctor only get enough meds to cover the pain they are currently experiencing. IE. I have been hospitalized enough times and met many pts who regularly take for instance the duragesic patch for cancer pain yet they have a colon blockage or their appendix is inflamed. They can feel that pain because their pain meds does not cover both sources of pain. I've sat in on enough md visits and heard the doctor tell those pts don't worry I will keep you on your regular meds and give you additional coverage for the post surgical pain. It is a HUGE myth that pain meds takes pain away completely. I can CERTAINLY attest to that! The only time in 10 yrs of extreme pain that I had sufficient coverage was When I took Actiq and IM Demerol Simultaneously. I was having severe stomach problems. People with EDS Have multiple sources of pain. When My fingers were burning and my hips were messed up the meds would only go to one place. I did not have a choice which area would be covered. It was usually the area that hurt more. So I was ALWAYS left with at least multiple sites hurting.   Most pain pts under the care of a doctor only get enough meds to cover the pain they are currently experiencing. IE. I have been hospitalized enough times and met many pts who regularly take for instance the duragesic patch for cancer pain yet they have a colon blockage or their appendix is inflamed. They can feel that pain because their pain meds does not cover both sources of pain. I've sat in on enough md visits and heard the doctor tell those pts don't worry I will keep you on your regular meds and give you additional coverage for the post surgical pain. It is a HUGE myth that pain meds takes pain away completely. I can CERTAINLY attest to that! The only time in 10 yrs of extreme pain that I had sufficient coverage was When I took Actiq and IM Demerol Simultaneously. I was having severe stomach problems. People with EDS Have multiple sources of pain. When My fingers were burning and my hips were messed up the meds would only go to one place. I did not have a choice which area would be covered. It was usually the area that hurt more. So I was ALWAYS left with at least multiple sites hurting.   Sun, 19 Jun 2011 02:41:39 GMT http://community.aetv.com/_Pain-med-Myths/blog/4237861/119137.html linkizzy77 2011-06-19T02:41:39Z AETV Community Most pain pts under the care of a doctor only get enough meds to cover the pain they are currently experiencing. IE. I have been hospitalized enough times and met many pts who regularly take for instance the duragesic patch for cancer pain yet they have a colon blockage or their appendix is inflamed. They can feel that pain because their pain meds does not cover both sources of pain. I've sat in on enough md visits and heard the doctor tell those pts don't worry I will keep you on your regular meds and give you additional coverage for the post surgical pain. It is a HUGE myth that pain meds takes pain away completely. I can CERTAINLY attest to that! The only time in 10 yrs of extreme pain that I had sufficient coverage was When I took Actiq and IM Demerol Simultaneously. I was having severe stomach problems. People with EDS Have multiple sources of pain. When My fingers were burning and my hips were messed up the meds would only go to one place. I did not have a choice which area would be covered. It was usually the area that hurt more. So I was ALWAYS left with at least multiple sites hurting.   nonadult false Pain med Myths text blog 1734 0 0.0 http://community.aetv.com/service/displayKickPlace.kickAction?u=18522776&as=119137 http://media.kickstatic.com/kickapps/images/user/defaultImage_160x120_D.jpg false 4 0 4237861 18522776 Member 0 http://community.aetv.com/_Jeff-Conaway-Died-Let39s-learn/blog/3707443/119137.html I am so Saddened by this news. My heart goes out to him and his Family. It is such a difficult position to be in. To have Chronic pain alongside his demons. To be honest I felt Jeff should never have been treated in an environment like Celeb Rehab. He had addictions but he also had pain and they never seemed to address that aspect of his life very well. They treated him as if he really did not need to be on any pain meds. Which is never the case. Hopefully more doctors can learn from stories like his. We need more Doctors to learn about how to properly treat pain pts. It's not so simple that they just classified him as an addict. In the wake of this tragedy I hope Doctor's  stand up and recognize the plight of pain pts Before more follow.   I am so Saddened by this news. My heart goes out to him and his Family. It is such a difficult position to be in. To have Chronic pain alongside his demons. To be honest I felt Jeff should never have been treated in an environment like Celeb Rehab. He had addictions but he also had pain and they never seemed to address that aspect of his life very well. They treated him as if he really did not need to be on any pain meds. Which is never the case. Hopefully more doctors can learn from stories like his. We need more Doctors to learn about how to properly treat pain pts. It's not so simple that they just classified him as an addict. In the wake of this tragedy I hope Doctor's  stand up and recognize the plight of pain pts Before more follow.   Sat, 28 May 2011 03:28:42 GMT http://community.aetv.com/_Jeff-Conaway-Died-Let39s-learn/blog/3707443/119137.html linkizzy77 2011-05-28T03:28:42Z AETV Community I am so Saddened by this news. My heart goes out to him and his Family. It is such a difficult position to be in. To have Chronic pain alongside his demons. To be honest I felt Jeff should never have been treated in an environment like Celeb Rehab. He had addictions but he also had pain and they never seemed to address that aspect of his life very well. They treated him as if he really did not need to be on any pain meds. Which is never the case. Hopefully more doctors can learn from stories like his. We need more Doctors to learn about how to properly treat pain pts. It's not so simple that they just classified him as an addict. In the wake of this tragedy I hope Doctor's  stand up and recognize the plight of pain pts Before more follow.   nonadult false Jeff Conaway Died Let's learn text blog 1082 0 0.0 http://community.aetv.com/service/displayKickPlace.kickAction?u=18522776&as=119137 http://media.kickstatic.com/kickapps/images/user/defaultImage_160x120_B.jpg false 0 0 3707443 18522776 Member 0 http://community.aetv.com/_Not-Treating-Jeff-Conaway39s-Pain/blog/3707359/119137.html Maybe they just didn't show it. But it's doubtful they wouldn't . Love to have Dr Drew answer to this. During Celeb rehab they never once showed Jeff getting any proper counseling for Pain Management. They just acted like he was exaggerating it all. I will never forget the last scene where he  could not wait to get home so that he could take his pills so his pain would go away. How tragic that they showed on TV a guy who really was not properly treated. I don't think it was right that he was put in a regular rehab with him as the only pain pt. I really do think it is important for Pain pts to be around others who are going through the same thing. I mean by Jeff Rushing home to have his pain relieved is a classic example of him getting mistreated by the system. How can Dr. Drew have any credibility if while he was under his care he was still suffering so. Jeff would have thought to himself what's the point of my trusting Dr. Drew if my pain is still so unmanageable. So easy to discount things you learn in rehab if they are not ringing true for you. It seemed Drew just wanted Jeff to White knuckle his pain. In turn it turned into disaster. Love to get Drew's thoughts on this one.  Maybe they just didn't show it. But it's doubtful they wouldn't . Love to have Dr Drew answer to this. During Celeb rehab they never once showed Jeff getting any proper counseling for Pain Management. They just acted like he was exaggerating it all. I will never forget the last scene where he  could not wait to get home so that he could take his pills so his pain would go away. How tragic that they showed on TV a guy who really was not properly treated. I don't think it was right that he was put in a regular rehab with him as the only pain pt. I really do think it is important for Pain pts to be around others who are going through the same thing. I mean by Jeff Rushing home to have his pain relieved is a classic example of him getting mistreated by the system. How can Dr. Drew have any credibility if while he was under his care he was still suffering so. Jeff would have thought to himself what's the point of my trusting Dr. Drew if my pain is still so unmanageable. So easy to discount things you learn in rehab if they are not ringing true for you. It seemed Drew just wanted Jeff to White knuckle his pain. In turn it turned into disaster. Love to get Drew's thoughts on this one.  Fri, 27 May 2011 23:21:35 GMT http://community.aetv.com/_Not-Treating-Jeff-Conaway39s-Pain/blog/3707359/119137.html linkizzy77 2011-05-27T23:21:35Z AETV Community Maybe they just didn't show it. But it's doubtful they wouldn't . Love to have Dr Drew answer to this. During Celeb rehab they never once showed Jeff getting any proper counseling for Pain Management. They just acted like he was exaggerating it all. I will never forget the last scene where he  could not wait to get home so that he could take his pills so his pain would go away. How tragic that they showed on TV a guy who really was not properly treated. I don't think it was right that he was put in a regular rehab with him as the only pain pt. I really do think it is important for Pain pts to be around others who are going through the same thing. I mean by Jeff Rushing home to have his pain relieved is a classic example of him getting mistreated by the system. How can Dr. Drew have any credibility if while he was under his care he was still suffering so. Jeff would have thought to himself what's the point of my trusting Dr. Drew if my pain is still so unmanageable. So easy to discount things you learn in rehab if they are not ringing true for you. It seemed Drew just wanted Jeff to White knuckle his pain. In turn it turned into disaster. Love to get Drew's thoughts on this one.  nonadult false Not Treating Jeff Conaway's Pain text blog 812 0 0.0 http://community.aetv.com/service/displayKickPlace.kickAction?u=18522776&as=119137 http://media.kickstatic.com/kickapps/images/user/defaultImage_160x120_B.jpg false 0 0 3707359 18522776 Member 0 http://community.aetv.com/_Mother39s-Day-Thought/blog/3585414/119137.html  I have to give it up for my Mom!! Two years later and the most wonderful moment of the Whole Intervention was when she stood up for the truth in the end! I think many mother's who have children with rare illnesses could probably relate to her difficult position. I have read many books on Autism and the mother's go to their own doctors and say that there is something wrong with their child yet the doctors would just say that everything is fine and it is all in their heads. Unfortunately Many Mother's of Ehlers danlos Children suffer the same plight. They take their children from doctor to doctor only to be told they are the crazy ones. Not just from Doctors but educators as well since it is such a hidden disablity. (Been around the block at support groups) But My Mother My HERO! To be yelled at by multiple people including my ignorant  Sister in Law who had never even met me. Even so called experts. And to be confident in her own reality. She is a star in the sky for that! the only reason I agreed to go to treatment was because it broke my heart to see her being treated that way. Telling someone they are crazy or wrong when they aren't is just tragic. I would always be in the worst excruciating pain in  the ER's and would have the ER doc's accuse me of lying and drug seeking. So to see that happen to my mom was the absolutely worst experience ever. I agreed to go to tx just to put a stop to it. Ugh imagine having a child you know is in excruciating pain and have them be denied pain meds is just sick to me. I could not imagine having to go through that. It would send me into a depression. Sometimes it's easier to be the one in pain.  But on this Mother's Day that is what sticks out in my mind :) The strength Mother's have to not let their child be hurt or in danger even under the pressure of "expert advice" To be honest I think that scene is a classic Mother's Day moment. Kudos to my mom for that!!!  I have to give it up for my Mom!! Two years later and the most wonderful moment of the Whole Intervention was when she stood up for the truth in the end! I think many mother's who have children with rare illnesses could probably relate to her difficult position. I have read many books on Autism and the mother's go to their own doctors and say that there is something wrong with their child yet the doctors would just say that everything is fine and it is all in their heads. Unfortunately Many Mother's of Ehlers danlos Children suffer the same plight. They take their children from doctor to doctor only to be told they are the crazy ones. Not just from Doctors but educators as well since it is such a hidden disablity. (Been around the block at support groups) But My Mother My HERO! To be yelled at by multiple people including my ignorant  Sister in Law who had never even met me. Even so called experts. And to be confident in her own reality. She is a star in the sky for that! the only reason I agreed to go to treatment was because it broke my heart to see her being treated that way. Telling someone they are crazy or wrong when they aren't is just tragic. I would always be in the worst excruciating pain in  the ER's and would have the ER doc's accuse me of lying and drug seeking. So to see that happen to my mom was the absolutely worst experience ever. I agreed to go to tx just to put a stop to it. Ugh imagine having a child you know is in excruciating pain and have them be denied pain meds is just sick to me. I could not imagine having to go through that. It would send me into a depression. Sometimes it's easier to be the one in pain.  But on this Mother's Day that is what sticks out in my mind :) The strength Mother's have to not let their child be hurt or in danger even under the pressure of "expert advice" To be honest I think that scene is a classic Mother's Day moment. Kudos to my mom for that!!! Sun, 08 May 2011 23:53:00 GMT http://community.aetv.com/_Mother39s-Day-Thought/blog/3585414/119137.html linkizzy77 2011-05-08T23:53:00Z AETV Community  I have to give it up for my Mom!! Two years later and the most wonderful moment of the Whole Intervention was when she stood up for the truth in the end! I think many mother's who have children with rare illnesses could probably relate to her difficult position. I have read many books on Autism and the mother's go to their own doctors and say that there is something wrong with their child yet the doctors would just say that everything is fine and it is all in their heads. Unfortunately Many Mother's of Ehlers danlos Children suffer the same plight. They take their children from doctor to doctor only to be told they are the crazy ones. Not just from Doctors but educators as well since it is such a hidden disablity. (Been around the block at support groups) But My Mother My HERO! To be yelled at by multiple people including my ignorant  Sister in Law who had never even met me. Even so called experts. And to be confident in her own reality. She is a star in the sky for that! the only reason I agreed to go to treatment was because it broke my heart to see her being treated that way. Telling someone they are crazy or wrong when they aren't is just tragic. I would always be in the worst excruciating pain in  the ER's and would have the ER doc's accuse me of lying and drug seeking. So to see that happen to my mom was the absolutely worst experience ever. I agreed to go to tx just to put a stop to it. Ugh imagine having a child you know is in excruciating pain and have them be denied pain meds is just sick to me. I could not imagine having to go through that. It would send me into a depression. Sometimes it's easier to be the one in pain.  But on this Mother's Day that is what sticks out in my mind :) The strength Mother's have to not let their child be hurt or in danger even under the pressure of "expert advice" To be honest I think that scene is a classic Mother's Day moment. Kudos to my mom for that!!! nonadult false Mother's Day Thought text blog 915 0 0.0 http://community.aetv.com/service/displayKickPlace.kickAction?u=18522776&as=119137 http://media.kickstatic.com/kickapps/images/user/defaultImage_160x120_A.jpg false 1 0 3585414 18522776 Member 0 http://community.aetv.com/_You-saved-my-life/blog/3513778/119137.html This has to be the wierdest thing that has ever happened. I was at Bay recovery today and started a conversation with a pt who was there for pain management of an inoperable brain tumor. The first thing she says to me was that someone she knew saw an episode of TV about a girl who took actiq so thats why she was in treatment. I did n't say anything right away. i just asked her about her meds and mentioned that I took actiq as well. But then I started wondering if there was more than one show about a girl who took actiq. So she tells me that her daughter saw an episode of intervention and got her into treatment. So I let her know that it was me. She starts crying saying that I saved her life. that she would be dead if it hadn't been for my show. It made me cry as well. All I kept thinking was.Let's just see what your outcome is.  Actually I said that out loud. I honestly worry if I am taking Pain meds away from people who really need it. I don't know her entire story just that she is still on high dosages of pain meds.I mean I am still trying to process this. I guess it is good that other people on high dosages of pain meds are seeking treatment particularly if they feel they have a problem.  It's just strange to have someone relate to me in such a inaccurate way. Ok well I am happy that she feels I changed her life for the better. But the thing is and it's probably something that time will tell. Dr Rand is no miracle worker. It is a decent program. I think she will benefit from the pain program aspect of it. It's just I wonder how the change in pain meds will affect her in the end. I mean she was on Actiq and a bunch of other stuff in addition.  9 Actiq was her side thing.  this shall be interesting. For some reason I can feel a "you got me into treatment and now I'm in more pain than ever!"  coming on. I sure hope that doesnt happen. I should have asked her if she felt she was an Addict. I think she felt she was cause she said something about taking more than prescribed. So if she feels that I saved her from an addiction problem thats fine. I just hope she doesn't expect to be out of pain. Linda This has to be the wierdest thing that has ever happened. I was at Bay recovery today and started a conversation with a pt who was there for pain management of an inoperable brain tumor. The first thing she says to me was that someone she knew saw an episode of TV about a girl who took actiq so thats why she was in treatment. I did n't say anything right away. i just asked her about her meds and mentioned that I took actiq as well. But then I started wondering if there was more than one show about a girl who took actiq. So she tells me that her daughter saw an episode of intervention and got her into treatment. So I let her know that it was me. She starts crying saying that I saved her life. that she would be dead if it hadn't been for my show. It made me cry as well. All I kept thinking was.Let's just see what your outcome is.  Actually I said that out loud. I honestly worry if I am taking Pain meds away from people who really need it. I don't know her entire story just that she is still on high dosages of pain meds.I mean I am still trying to process this. I guess it is good that other people on high dosages of pain meds are seeking treatment particularly if they feel they have a problem.  It's just strange to have someone relate to me in such a inaccurate way. Ok well I am happy that she feels I changed her life for the better. But the thing is and it's probably something that time will tell. Dr Rand is no miracle worker. It is a decent program. I think she will benefit from the pain program aspect of it. It's just I wonder how the change in pain meds will affect her in the end. I mean she was on Actiq and a bunch of other stuff in addition.  9 Actiq was her side thing.  this shall be interesting. For some reason I can feel a "you got me into treatment and now I'm in more pain than ever!"  coming on. I sure hope that doesnt happen. I should have asked her if she felt she was an Addict. I think she felt she was cause she said something about taking more than prescribed. So if she feels that I saved her from an addiction problem thats fine. I just hope she doesn't expect to be out of pain. Linda Wed, 27 Apr 2011 05:53:11 GMT http://community.aetv.com/_You-saved-my-life/blog/3513778/119137.html linkizzy77 2011-04-27T05:53:11Z AETV Community This has to be the wierdest thing that has ever happened. I was at Bay recovery today and started a conversation with a pt who was there for pain management of an inoperable brain tumor. The first thing she says to me was that someone she knew saw an episode of TV about a girl who took actiq so thats why she was in treatment. I did n't say anything right away. i just asked her about her meds and mentioned that I took actiq as well. But then I started wondering if there was more than one show about a girl who took actiq. So she tells me that her daughter saw an episode of intervention and got her into treatment. So I let her know that it was me. She starts crying saying that I saved her life. that she would be dead if it hadn't been for my show. It made me cry as well. All I kept thinking was.Let's just see what your outcome is.  Actually I said that out loud. I honestly worry if I am taking Pain meds away from people who really need it. I don't know her entire story just that she is still on high dosages of pain meds.I mean I am still trying to process this. I guess it is good that other people on high dosages of pain meds are seeking treatment particularly if they feel they have a problem.  It's just strange to have someone relate to me in such a inaccurate way. Ok well I am happy that she feels I changed her life for the better. But the thing is and it's probably something that time will tell. Dr Rand is no miracle worker. It is a decent program. I think she will benefit from the pain program aspect of it. It's just I wonder how the change in pain meds will affect her in the end. I mean she was on Actiq and a bunch of other stuff in addition.  9 Actiq was her side thing.  this shall be interesting. For some reason I can feel a "you got me into treatment and now I'm in more pain than ever!"  coming on. I sure hope that doesnt happen. I should have asked her if she felt she was an Addict. I think she felt she was cause she said something about taking more than prescribed. So if she feels that I saved her from an addiction problem thats fine. I just hope she doesn't expect to be out of pain. Linda nonadult false You saved my life! text blog 1202 0 0.0 http://community.aetv.com/service/displayKickPlace.kickAction?u=18522776&as=119137 http://media.kickstatic.com/kickapps/images/user/defaultImage_160x120_D.jpg false 0 0 3513778 18522776 Member 0 http://community.aetv.com/_When-it-all-Goes-Right/blog/3479005/119137.html When it all goes right!There was A Greys Anatomy Quote that I thought perfectly suited my life. Why is the Universe so screwed up and random and mean? That is exactly how the show was to me. To have suffered through yrs of excruciating pain and disability only to have a show portray the whole experience as I honestly don't think there are words to describe it. Kinda like calling holocaust survivors liars and bad people for even making claims. Anyway, who knew that a week after the quote the stars would all align perfectly for me and allow a deep seated wish come true. Of course I am talking about the Doctors I spoke to but particularly the ones concerned about prescribing Pain Meds to their EDS Pts. My whole goal of Filming was to reach those Doctors.So in a way my wish came true but in a very roundabout way. The thought of Pain pts going without pain meds churns my stomache. Speaking of which a new EDS member showed up at the Convention and all I can say about how much Medication he was on was that it was well over 10x what I had been on on the show. It was actually kinda shocking even to me. I think it even exceeded what I have seen Doctor Rand Prescribe. I'm sure most people would hear what he was on and immediately think Big time Addict. It's nice that people like me don't have that kind of judgement. Because I have been there. I was just concerned that if he did move he could find a doctor that would be willling to keep prescribing at that level.  Anyway this person also had RSD and said that Ketamine was extremely helpful.But when I say the stars had to align perfectly. They really did. I had to find my way to San Diego, be motivated enough to join EDS out here, get my pain under control so I don't sound like a rambling Idiot. Then there was the Japan disaster that had it happened a week later I would never had been able to attend the event. Also and I took this to be quite the sign the someone upstairs was really looking out for me. There were many booths that had at least 5 laptops goin on. and had our booth been next to one of them it was pretty much over for me. Our whole section was almost lap top free. So did God make up for the Debacle? Kind of.... Linda ;) When it all goes right!There was A Greys Anatomy Quote that I thought perfectly suited my life. Why is the Universe so screwed up and random and mean? That is exactly how the show was to me. To have suffered through yrs of excruciating pain and disability only to have a show portray the whole experience as I honestly don't think there are words to describe it. Kinda like calling holocaust survivors liars and bad people for even making claims. Anyway, who knew that a week after the quote the stars would all align perfectly for me and allow a deep seated wish come true. Of course I am talking about the Doctors I spoke to but particularly the ones concerned about prescribing Pain Meds to their EDS Pts. My whole goal of Filming was to reach those Doctors.So in a way my wish came true but in a very roundabout way. The thought of Pain pts going without pain meds churns my stomache. Speaking of which a new EDS member showed up at the Convention and all I can say about how much Medication he was on was that it was well over 10x what I had been on on the show. It was actually kinda shocking even to me. I think it even exceeded what I have seen Doctor Rand Prescribe. I'm sure most people would hear what he was on and immediately think Big time Addict. It's nice that people like me don't have that kind of judgement. Because I have been there. I was just concerned that if he did move he could find a doctor that would be willling to keep prescribing at that level.  Anyway this person also had RSD and said that Ketamine was extremely helpful.But when I say the stars had to align perfectly. They really did. I had to find my way to San Diego, be motivated enough to join EDS out here, get my pain under control so I don't sound like a rambling Idiot. Then there was the Japan disaster that had it happened a week later I would never had been able to attend the event. Also and I took this to be quite the sign the someone upstairs was really looking out for me. There were many booths that had at least 5 laptops goin on. and had our booth been next to one of them it was pretty much over for me. Our whole section was almost lap top free. So did God make up for the Debacle? Kind of.... Linda ;) Thu, 21 Apr 2011 05:26:18 GMT http://community.aetv.com/_When-it-all-Goes-Right/blog/3479005/119137.html linkizzy77 2011-04-21T05:26:18Z AETV Community When it all goes right!There was A Greys Anatomy Quote that I thought perfectly suited my life. Why is the Universe so screwed up and random and mean? That is exactly how the show was to me. To have suffered through yrs of excruciating pain and disability only to have a show portray the whole experience as I honestly don't think there are words to describe it. Kinda like calling holocaust survivors liars and bad people for even making claims. Anyway, who knew that a week after the quote the stars would all align perfectly for me and allow a deep seated wish come true. Of course I am talking about the Doctors I spoke to but particularly the ones concerned about prescribing Pain Meds to their EDS Pts. My whole goal of Filming was to reach those Doctors.So in a way my wish came true but in a very roundabout way. The thought of Pain pts going without pain meds churns my stomache. Speaking of which a new EDS member showed up at the Convention and all I can say about how much Medication he was on was that it was well over 10x what I had been on on the show. It was actually kinda shocking even to me. I think it even exceeded what I have seen Doctor Rand Prescribe. I'm sure most people would hear what he was on and immediately think Big time Addict. It's nice that people like me don't have that kind of judgement. Because I have been there. I was just concerned that if he did move he could find a doctor that would be willling to keep prescribing at that level.  Anyway this person also had RSD and said that Ketamine was extremely helpful.But when I say the stars had to align perfectly. They really did. I had to find my way to San Diego, be motivated enough to join EDS out here, get my pain under control so I don't sound like a rambling Idiot. Then there was the Japan disaster that had it happened a week later I would never had been able to attend the event. Also and I took this to be quite the sign the someone upstairs was really looking out for me. There were many booths that had at least 5 laptops goin on. and had our booth been next to one of them it was pretty much over for me. Our whole section was almost lap top free. So did God make up for the Debacle? Kind of.... Linda ;) nonadult false When it all Goes Right! text blog 687 0 0.0 http://community.aetv.com/service/displayKickPlace.kickAction?u=18522776&as=119137 http://media.kickstatic.com/kickapps/images/user/defaultImage_160x120_B.jpg false 0 0 3479005 18522776 Member 0 http://community.aetv.com/_Funny-Convention-Moments/blog/3479037/119137.html Funny momentsThe Convention was so much fun But the highlights had to be when on the end of the first day one of the Doctors came over and commented on how we were the poorest people there! LOL Seriously all these rich corporations had these elaborate displays and exhibits. With plush carpeting furniture and expensive poster and signs. We were like little orphan annie or Oliver twist with our banner and sign. Our display board with the list of signs and SX of EDS looked like one of those middle school science project displays! I even got very protective over our candy. We are so poor we can hardly afford candy. At one point I was gonna yell at them not to take ours and go to a pharmaceutical exhibit since their loaded. Were freakin Broke. LOL But we Kicked butt!! We had at least 100 doctors come chat with us as compared to the less then 10 MDs that visited the Cleveland Clinic across from us. I was kinda tripping too cause The Cleveland clinic is Always referenced on Greys Anatomy and it was referenced again when I watched the show that night. We got a lot of sympathy too. Many doctors told their colleagues to come visit us cause they could tell we were not there to make money but help people. I came up with the best line too. As soon as I said all 3 of us have EDS that always peaked there interest and drew them in. Most had never seen a pt with EDS. Also this event renewed my faith in MDs.  I could tell the MDs that had pts with EDS were genuinely concerned for their pts. I genuinely have to give it up for our Leader Teri! What a genuis mind to think to do stuff like this to promote awareness. This event could not have been more of a success. We had doctors from all over the country and from other countries. And being in San diego it was an incredible turn out. I'm now fully into fundraising for events like this. It's so Sad The National Foundation will not help us in any way with sponsoring events like this. They will not even provide literature. Can you imagine we had to be stingy about handing out Literature.What a Shame. To spend $2200 to rent the space and we can barely afford to hand out candy or brochures. Thats ridiculous. I think next time I will Be soliciting Donations from This Board! But it kinda felt like i was trick or treating for doctors to educate. At one point I felt like I was hogging all the costumers.  But Teri Kept handing them off to me so I guess she thought I was pretty good at it particularly since it was my first time. Thank God my chronic pain made me into an amazing conversationalist! Now I realize why Teri and Lani wanted my help so bad. I can remember the day at the meeting when they heard me speak they kept looking at each other and saying we need her at the next Doctors conference. In all my yrs at LA. The group there has never done anything like this. We get so little money as it is. Far below anything for research. I originally thought this would be like the Musical Greys episode. A really bad idea , maybe a waste of money. But No It was worth every penny and more. I'm so stingy and really wanted us to get our moneys worth so I was tempted to start soliciting doctors. But I saw what could be considered very little money make the hugest difference for the lives of many. It's also cool that we attracted so much more attention than the Cleveland clinic with our Uglyass sign LOL! Funny momentsThe Convention was so much fun But the highlights had to be when on the end of the first day one of the Doctors came over and commented on how we were the poorest people there! LOL Seriously all these rich corporations had these elaborate displays and exhibits. With plush carpeting furniture and expensive poster and signs. We were like little orphan annie or Oliver twist with our banner and sign. Our display board with the list of signs and SX of EDS looked like one of those middle school science project displays! I even got very protective over our candy. We are so poor we can hardly afford candy. At one point I was gonna yell at them not to take ours and go to a pharmaceutical exhibit since their loaded. Were freakin Broke. LOL But we Kicked butt!! We had at least 100 doctors come chat with us as compared to the less then 10 MDs that visited the Cleveland Clinic across from us. I was kinda tripping too cause The Cleveland clinic is Always referenced on Greys Anatomy and it was referenced again when I watched the show that night. We got a lot of sympathy too. Many doctors told their colleagues to come visit us cause they could tell we were not there to make money but help people. I came up with the best line too. As soon as I said all 3 of us have EDS that always peaked there interest and drew them in. Most had never seen a pt with EDS. Also this event renewed my faith in MDs.  I could tell the MDs that had pts with EDS were genuinely concerned for their pts. I genuinely have to give it up for our Leader Teri! What a genuis mind to think to do stuff like this to promote awareness. This event could not have been more of a success. We had doctors from all over the country and from other countries. And being in San diego it was an incredible turn out. I'm now fully into fundraising for events like this. It's so Sad The National Foundation will not help us in any way with sponsoring events like this. They will not even provide literature. Can you imagine we had to be stingy about handing out Literature.What a Shame. To spend $2200 to rent the space and we can barely afford to hand out candy or brochures. Thats ridiculous. I think next time I will Be soliciting Donations from This Board! But it kinda felt like i was trick or treating for doctors to educate. At one point I felt like I was hogging all the costumers.  But Teri Kept handing them off to me so I guess she thought I was pretty good at it particularly since it was my first time. Thank God my chronic pain made me into an amazing conversationalist! Now I realize why Teri and Lani wanted my help so bad. I can remember the day at the meeting when they heard me speak they kept looking at each other and saying we need her at the next Doctors conference. In all my yrs at LA. The group there has never done anything like this. We get so little money as it is. Far below anything for research. I originally thought this would be like the Musical Greys episode. A really bad idea , maybe a waste of money. But No It was worth every penny and more. I'm so stingy and really wanted us to get our moneys worth so I was tempted to start soliciting doctors. But I saw what could be considered very little money make the hugest difference for the lives of many. It's also cool that we attracted so much more attention than the Cleveland clinic with our Uglyass sign LOL! Thu, 21 Apr 2011 01:30:22 GMT http://community.aetv.com/_Funny-Convention-Moments/blog/3479037/119137.html linkizzy77 2011-04-21T01:30:22Z AETV Community Funny momentsThe Convention was so much fun But the highlights had to be when on the end of the first day one of the Doctors came over and commented on how we were the poorest people there! LOL Seriously all these rich corporations had these elaborate displays and exhibits. With plush carpeting furniture and expensive poster and signs. We were like little orphan annie or Oliver twist with our banner and sign. Our display board with the list of signs and SX of EDS looked like one of those middle school science project displays! I even got very protective over our candy. We are so poor we can hardly afford candy. At one point I was gonna yell at them not to take ours and go to a pharmaceutical exhibit since their loaded. Were freakin Broke. LOL But we Kicked butt!! We had at least 100 doctors come chat with us as compared to the less then 10 MDs that visited the Cleveland Clinic across from us. I was kinda tripping too cause The Cleveland clinic is Always referenced on Greys Anatomy and it was referenced again when I watched the show that night. We got a lot of sympathy too. Many doctors told their colleagues to come visit us cause they could tell we were not there to make money but help people. I came up with the best line too. As soon as I said all 3 of us have EDS that always peaked there interest and drew them in. Most had never seen a pt with EDS. Also this event renewed my faith in MDs.  I could tell the MDs that had pts with EDS were genuinely concerned for their pts. I genuinely have to give it up for our Leader Teri! What a genuis mind to think to do stuff like this to promote awareness. This event could not have been more of a success. We had doctors from all over the country and from other countries. And being in San diego it was an incredible turn out. I'm now fully into fundraising for events like this. It's so Sad The National Foundation will not help us in any way with sponsoring events like this. They will not even provide literature. Can you imagine we had to be stingy about handing out Literature.What a Shame. To spend $2200 to rent the space and we can barely afford to hand out candy or brochures. Thats ridiculous. I think next time I will Be soliciting Donations from This Board! But it kinda felt like i was trick or treating for doctors to educate. At one point I felt like I was hogging all the costumers.  But Teri Kept handing them off to me so I guess she thought I was pretty good at it particularly since it was my first time. Thank God my chronic pain made me into an amazing conversationalist! Now I realize why Teri and Lani wanted my help so bad. I can remember the day at the meeting when they heard me speak they kept looking at each other and saying we need her at the next Doctors conference. In all my yrs at LA. The group there has never done anything like this. We get so little money as it is. Far below anything for research. I originally thought this would be like the Musical Greys episode. A really bad idea , maybe a waste of money. But No It was worth every penny and more. I'm so stingy and really wanted us to get our moneys worth so I was tempted to start soliciting doctors. But I saw what could be considered very little money make the hugest difference for the lives of many. It's also cool that we attracted so much more attention than the Cleveland clinic with our Uglyass sign LOL! nonadult false Funny Convention Moments text blog 699 0 0.0 http://community.aetv.com/service/displayKickPlace.kickAction?u=18522776&as=119137 http://media.kickstatic.com/kickapps/images/user/defaultImage_160x120_B.jpg false 0 0 3479037 18522776 Member 0 http://community.aetv.com/_Doctors-Conference/blog/3478967/119137.html  Doctors ConferenceUpdate!I just got back from the Internal Medicine Doctors Conference and it was a Splendid Experience! I think I found my Calling. A ton of doctors came by and many had pts with EDS and they were actually seeking our advice on how to treat thier own pts. The highlight had to have been one doctor who was concerned about how much pain medication he was prescribing one of his pts. He was aware that she had become dependent and did not know what to do. I told him from personal experience even while I was on high dosages of narcotics I still had enormous pain and it was better to err on the side of caution. I liked his attitude that he did no want to undertreat her pain. I told him that it was better to have an addict than to live in chronic excruciating pain. He genuinely appreciated my advice. and I seemed to calm down his anxieties about overprescribing. Wow, To get to share information with doctors like that is just a thrill. It's all i ever wanted. Getting to do stuff like this is almost worth the entire Intervention Experience. What I loved was getting to ask doctors what they were doing for their EDS PTS. It seemed the most interested doctors were the ones who had family or friends with the condition. They really were looking to us for help. There is so much to blog about this topic. It was fun to see doctors reactions to their knowledge about EDS and Marfan's. So many misconceptions and misinformation. I really wish I could find a way for this to be my full time job. Sitting at Doctors conferences and sharing my EDS Expertise. The craziest was the Doctor from West Hartford CT who showed up who also had a EDS pt who he was at a loss about. My freakin home town. What a small world. Anyway I'll be there again tommorrow. I am seriously having the most fun and learning a ton!  Doctors ConferenceUpdate!I just got back from the Internal Medicine Doctors Conference and it was a Splendid Experience! I think I found my Calling. A ton of doctors came by and many had pts with EDS and they were actually seeking our advice on how to treat thier own pts. The highlight had to have been one doctor who was concerned about how much pain medication he was prescribing one of his pts. He was aware that she had become dependent and did not know what to do. I told him from personal experience even while I was on high dosages of narcotics I still had enormous pain and it was better to err on the side of caution. I liked his attitude that he did no want to undertreat her pain. I told him that it was better to have an addict than to live in chronic excruciating pain. He genuinely appreciated my advice. and I seemed to calm down his anxieties about overprescribing. Wow, To get to share information with doctors like that is just a thrill. It's all i ever wanted. Getting to do stuff like this is almost worth the entire Intervention Experience. What I loved was getting to ask doctors what they were doing for their EDS PTS. It seemed the most interested doctors were the ones who had family or friends with the condition. They really were looking to us for help. There is so much to blog about this topic. It was fun to see doctors reactions to their knowledge about EDS and Marfan's. So many misconceptions and misinformation. I really wish I could find a way for this to be my full time job. Sitting at Doctors conferences and sharing my EDS Expertise. The craziest was the Doctor from West Hartford CT who showed up who also had a EDS pt who he was at a loss about. My freakin home town. What a small world. Anyway I'll be there again tommorrow. I am seriously having the most fun and learning a ton! Thu, 21 Apr 2011 01:21:59 GMT http://community.aetv.com/_Doctors-Conference/blog/3478967/119137.html linkizzy77 2011-04-21T01:21:59Z AETV Community  Doctors ConferenceUpdate!I just got back from the Internal Medicine Doctors Conference and it was a Splendid Experience! I think I found my Calling. A ton of doctors came by and many had pts with EDS and they were actually seeking our advice on how to treat thier own pts. The highlight had to have been one doctor who was concerned about how much pain medication he was prescribing one of his pts. He was aware that she had become dependent and did not know what to do. I told him from personal experience even while I was on high dosages of narcotics I still had enormous pain and it was better to err on the side of caution. I liked his attitude that he did no want to undertreat her pain. I told him that it was better to have an addict than to live in chronic excruciating pain. He genuinely appreciated my advice. and I seemed to calm down his anxieties about overprescribing. Wow, To get to share information with doctors like that is just a thrill. It's all i ever wanted. Getting to do stuff like this is almost worth the entire Intervention Experience. What I loved was getting to ask doctors what they were doing for their EDS PTS. It seemed the most interested doctors were the ones who had family or friends with the condition. They really were looking to us for help. There is so much to blog about this topic. It was fun to see doctors reactions to their knowledge about EDS and Marfan's. So many misconceptions and misinformation. I really wish I could find a way for this to be my full time job. Sitting at Doctors conferences and sharing my EDS Expertise. The craziest was the Doctor from West Hartford CT who showed up who also had a EDS pt who he was at a loss about. My freakin home town. What a small world. Anyway I'll be there again tommorrow. I am seriously having the most fun and learning a ton! nonadult false Doctors Conference text blog 689 0 0.0 http://community.aetv.com/service/displayKickPlace.kickAction?u=18522776&as=119137 http://media.kickstatic.com/kickapps/images/user/defaultImage_160x120_E.jpg false 0 0 3478967 18522776 Member 0 http://community.aetv.com/_More-Star-Trek/blog/3478940/119137.html More Star TrekThought I'd finish up the story since it is pretty funny. Well we filmed Claudes Crib on a friday night and the shoot went pretty late. I think i must have gotten out at 11pm and the Garrett Wang George Li connection wasn't made until late that night so Garrett must have been on the Star Trek stage late as well. Anyway I must have called my BFF Jennifer up late that night to tell her that it was true that My brother did in fact go to school with the guy from Star Trek. She tells me that She got a Saturday Job on an all Asian Film called one Hundred percent. And Jennifer is not Asian. She's a Blonde Bombshell type. So low and behold guess who she ends up working with the next morning. Garrett Wang! To top it off he starts hitting on her. since she is a blonde Bombshell. She does not watch Star Trek either and has no idea she is being hit on at 7am by the actor from star trek. So another Extras tells her who it is that is hitting on her. then all of sudden she makes the connection. So when he hits on her again she tells him that She knows that he knew my brother. Garret is totally dumbfounded by this news. He was completely confused and was like How would you know that? We just figured it out late last night literally hours ago. He totally thought he was being stalked and kept questioning her. She kept saying Because Linda is my friend.  Hollywood is such a freakin small world! Garret was so confused he kept asking her over and over how she would know such detailed info about his life. She kept saying Because Linda and I are friends and she told me. of all the Extras there How crazy is it that Garret picks out my BFF to start hitting on ? LOL More Star TrekThought I'd finish up the story since it is pretty funny. Well we filmed Claudes Crib on a friday night and the shoot went pretty late. I think i must have gotten out at 11pm and the Garrett Wang George Li connection wasn't made until late that night so Garrett must have been on the Star Trek stage late as well. Anyway I must have called my BFF Jennifer up late that night to tell her that it was true that My brother did in fact go to school with the guy from Star Trek. She tells me that She got a Saturday Job on an all Asian Film called one Hundred percent. And Jennifer is not Asian. She's a Blonde Bombshell type. So low and behold guess who she ends up working with the next morning. Garrett Wang! To top it off he starts hitting on her. since she is a blonde Bombshell. She does not watch Star Trek either and has no idea she is being hit on at 7am by the actor from star trek. So another Extras tells her who it is that is hitting on her. then all of sudden she makes the connection. So when he hits on her again she tells him that She knows that he knew my brother. Garret is totally dumbfounded by this news. He was completely confused and was like How would you know that? We just figured it out late last night literally hours ago. He totally thought he was being stalked and kept questioning her. She kept saying Because Linda is my friend.  Hollywood is such a freakin small world! Garret was so confused he kept asking her over and over how she would know such detailed info about his life. She kept saying Because Linda and I are friends and she told me. of all the Extras there How crazy is it that Garret picks out my BFF to start hitting on ? LOL Thu, 21 Apr 2011 01:18:05 GMT http://community.aetv.com/_More-Star-Trek/blog/3478940/119137.html linkizzy77 2011-04-21T01:18:05Z AETV Community More Star TrekThought I'd finish up the story since it is pretty funny. Well we filmed Claudes Crib on a friday night and the shoot went pretty late. I think i must have gotten out at 11pm and the Garrett Wang George Li connection wasn't made until late that night so Garrett must have been on the Star Trek stage late as well. Anyway I must have called my BFF Jennifer up late that night to tell her that it was true that My brother did in fact go to school with the guy from Star Trek. She tells me that She got a Saturday Job on an all Asian Film called one Hundred percent. And Jennifer is not Asian. She's a Blonde Bombshell type. So low and behold guess who she ends up working with the next morning. Garrett Wang! To top it off he starts hitting on her. since she is a blonde Bombshell. She does not watch Star Trek either and has no idea she is being hit on at 7am by the actor from star trek. So another Extras tells her who it is that is hitting on her. then all of sudden she makes the connection. So when he hits on her again she tells him that She knows that he knew my brother. Garret is totally dumbfounded by this news. He was completely confused and was like How would you know that? We just figured it out late last night literally hours ago. He totally thought he was being stalked and kept questioning her. She kept saying Because Linda is my friend.  Hollywood is such a freakin small world! Garret was so confused he kept asking her over and over how she would know such detailed info about his life. She kept saying Because Linda and I are friends and she told me. of all the Extras there How crazy is it that Garret picks out my BFF to start hitting on ? LOL nonadult false More Star Trek text blog 626 0 0.0 http://community.aetv.com/service/displayKickPlace.kickAction?u=18522776&as=119137 http://media.kickstatic.com/kickapps/images/user/defaultImage_160x120_C.jpg false 0 0 3478940 18522776 Member 0 http://community.aetv.com/_TootieNatalie-Fantasy-Kim-Mindy/blog/3478933/119137.html Tootie/Natalie Kim Fields/Mindy CohnJust an example of what a cool job I had. As a kid I totally remember watching the Facts of life celebrate their 200th episode on ET. I remember them asking Kim Fields if she was ready to do 100 more. she looked tired and said. 50. So here I was on the Warner Bros Ranch studios working on Living Single having some down time. I'm sitting at the same picnic table as Kim Fields is being interviewed next to me by a reporter. They were about to hit 100 episodes and again the reporter asks her. Are you ready to do 100 more. what a wild Deja vu happening in front of my eyes. I swear to God i had the best job in the world!  My Mindy Cohn Encounter was kinda sad. I was working on a pilot i think and sitting in a chair when all of a sudden I noticed that the girl right next to me was Mindy Cohn. She was waiting to go into an audition. I had a magazine with me an as an Extra you really are not suppose to ask for autographs but since she wasn't technically working on the same set who knew what the rules were. Anyway I chickened out asking her. She was going over her lines anyway. But I noticed that her complexion was gonna hold her back immensely on getting any jobs. What was worse was she was competing against hot chics. I saw how the casting director greeted her. Hollywood sucks sometimes. I hate that I didn't ask for her autograph! I have so many great stories I should write a book! Tootie/Natalie Kim Fields/Mindy CohnJust an example of what a cool job I had. As a kid I totally remember watching the Facts of life celebrate their 200th episode on ET. I remember them asking Kim Fields if she was ready to do 100 more. she looked tired and said. 50. So here I was on the Warner Bros Ranch studios working on Living Single having some down time. I'm sitting at the same picnic table as Kim Fields is being interviewed next to me by a reporter. They were about to hit 100 episodes and again the reporter asks her. Are you ready to do 100 more. what a wild Deja vu happening in front of my eyes. I swear to God i had the best job in the world!  My Mindy Cohn Encounter was kinda sad. I was working on a pilot i think and sitting in a chair when all of a sudden I noticed that the girl right next to me was Mindy Cohn. She was waiting to go into an audition. I had a magazine with me an as an Extra you really are not suppose to ask for autographs but since she wasn't technically working on the same set who knew what the rules were. Anyway I chickened out asking her. She was going over her lines anyway. But I noticed that her complexion was gonna hold her back immensely on getting any jobs. What was worse was she was competing against hot chics. I saw how the casting director greeted her. Hollywood sucks sometimes. I hate that I didn't ask for her autograph! I have so many great stories I should write a book! Thu, 21 Apr 2011 01:15:43 GMT http://community.aetv.com/_TootieNatalie-Fantasy-Kim-Mindy/blog/3478933/119137.html linkizzy77 2011-04-21T01:15:43Z AETV Community Tootie/Natalie Kim Fields/Mindy CohnJust an example of what a cool job I had. As a kid I totally remember watching the Facts of life celebrate their 200th episode on ET. I remember them asking Kim Fields if she was ready to do 100 more. she looked tired and said. 50. So here I was on the Warner Bros Ranch studios working on Living Single having some down time. I'm sitting at the same picnic table as Kim Fields is being interviewed next to me by a reporter. They were about to hit 100 episodes and again the reporter asks her. Are you ready to do 100 more. what a wild Deja vu happening in front of my eyes. I swear to God i had the best job in the world!  My Mindy Cohn Encounter was kinda sad. I was working on a pilot i think and sitting in a chair when all of a sudden I noticed that the girl right next to me was Mindy Cohn. She was waiting to go into an audition. I had a magazine with me an as an Extra you really are not suppose to ask for autographs but since she wasn't technically working on the same set who knew what the rules were. Anyway I chickened out asking her. She was going over her lines anyway. But I noticed that her complexion was gonna hold her back immensely on getting any jobs. What was worse was she was competing against hot chics. I saw how the casting director greeted her. Hollywood sucks sometimes. I hate that I didn't ask for her autograph! I have so many great stories I should write a book! nonadult false Tootie/Natalie Fantasy Kim /Mindy text blog 636 0 0.0 http://community.aetv.com/service/displayKickPlace.kickAction?u=18522776&as=119137 http://media.kickstatic.com/kickapps/images/user/defaultImage_160x120_D.jpg false 0 0 3478933 18522776 Member 0 http://community.aetv.com/_Star-Trek-Story/blog/3478838/119137.html  Fun Star Trek Story Finally!This is what I call MAJOR Coincidences! So I'm working on Star Trek Voyager and the guest Star is Kristanna Loken from Terminator. So I'm sitting in the makeup chair next to her. and She was so friendly she asked where I was from . I said Connecticut. "oh my God i just filmed a movie there in waterbury called Preps. Thats where i met my boyfriend." Who was Justin Whalen at the time. Who was jimmy from lois and clark. I was like really? since when did they start making movies in Ct? Anyway it was around the Xmas holiday so I went home like 4 days later. I'm talking to one of Sam's high school buddies and he tells me he just worked as an Extra. I was like how would you work as an Extra in CT.?On a movie called preps! LOL and He remembered Kristanna and Everything.Ok to top it off George comes downstairs and asks me what I've worked on recently. I said i just did Voyager. Then he tells me that he went to chinese School in Taiwan in 1990 with Garrett Wang (ensign Kim) one of the stars of Voyager and that his real name is mike. I didn't believe him so he takes out his year book to show me his picture and also his class photo.I'm like no way!after the holidays I get back to paramount studios to work on Claude's Crib (Intervention connection is that Sam Mettler ( my producer) worked props for that show) We were half dressed for the shoot so half of paramounts crew members came by to check us out. The security guard from Star Trek shows up as well. He remembers me always cause everytime I work on Star trek I'm half dressed.So I send him with a note asking Garret if he went to chinese school in 1990 and if his real name is Mike? He came back and said yes.Then the Star Trek producers were unhappy with the lighting of the scene we shot so we had to do it over again. when I got back I saw Kristanna Loken again. I told her that my brother's friend had worked on her movie. She told me that she actually remembered him. While I was getting hair done Garrett Wang showed up to aks me who my brother was. I told him George. He's like oh yeah big guy. yeah thats me in his year book. so my whole family has Star Trek connections!  LOLThere is actually even more coincidences to this story but don't want to bore you.  Fun Star Trek Story Finally!This is what I call MAJOR Coincidences! So I'm working on Star Trek Voyager and the guest Star is Kristanna Loken from Terminator. So I'm sitting in the makeup chair next to her. and She was so friendly she asked where I was from . I said Connecticut. "oh my God i just filmed a movie there in waterbury called Preps. Thats where i met my boyfriend." Who was Justin Whalen at the time. Who was jimmy from lois and clark. I was like really? since when did they start making movies in Ct? Anyway it was around the Xmas holiday so I went home like 4 days later. I'm talking to one of Sam's high school buddies and he tells me he just worked as an Extra. I was like how would you work as an Extra in CT.?On a movie called preps! LOL and He remembered Kristanna and Everything.Ok to top it off George comes downstairs and asks me what I've worked on recently. I said i just did Voyager. Then he tells me that he went to chinese School in Taiwan in 1990 with Garrett Wang (ensign Kim) one of the stars of Voyager and that his real name is mike. I didn't believe him so he takes out his year book to show me his picture and also his class photo.I'm like no way!after the holidays I get back to paramount studios to work on Claude's Crib (Intervention connection is that Sam Mettler ( my producer) worked props for that show) We were half dressed for the shoot so half of paramounts crew members came by to check us out. The security guard from Star Trek shows up as well. He remembers me always cause everytime I work on Star trek I'm half dressed.So I send him with a note asking Garret if he went to chinese school in 1990 and if his real name is Mike? He came back and said yes.Then the Star Trek producers were unhappy with the lighting of the scene we shot so we had to do it over again. when I got back I saw Kristanna Loken again. I told her that my brother's friend had worked on her movie. She told me that she actually remembered him. While I was getting hair done Garrett Wang showed up to aks me who my brother was. I told him George. He's like oh yeah big guy. yeah thats me in his year book. so my whole family has Star Trek connections!  LOLThere is actually even more coincidences to this story but don't want to bore you. Thu, 21 Apr 2011 01:02:29 GMT http://community.aetv.com/_Star-Trek-Story/blog/3478838/119137.html linkizzy77 2011-04-21T01:02:29Z AETV Community  Fun Star Trek Story Finally!This is what I call MAJOR Coincidences! So I'm working on Star Trek Voyager and the guest Star is Kristanna Loken from Terminator. So I'm sitting in the makeup chair next to her. and She was so friendly she asked where I was from . I said Connecticut. "oh my God i just filmed a movie there in waterbury called Preps. Thats where i met my boyfriend." Who was Justin Whalen at the time. Who was jimmy from lois and clark. I was like really? since when did they start making movies in Ct? Anyway it was around the Xmas holiday so I went home like 4 days later. I'm talking to one of Sam's high school buddies and he tells me he just worked as an Extra. I was like how would you work as an Extra in CT.?On a movie called preps! LOL and He remembered Kristanna and Everything.Ok to top it off George comes downstairs and asks me what I've worked on recently. I said i just did Voyager. Then he tells me that he went to chinese School in Taiwan in 1990 with Garrett Wang (ensign Kim) one of the stars of Voyager and that his real name is mike. I didn't believe him so he takes out his year book to show me his picture and also his class photo.I'm like no way!after the holidays I get back to paramount studios to work on Claude's Crib (Intervention connection is that Sam Mettler ( my producer) worked props for that show) We were half dressed for the shoot so half of paramounts crew members came by to check us out. The security guard from Star Trek shows up as well. He remembers me always cause everytime I work on Star trek I'm half dressed.So I send him with a note asking Garret if he went to chinese school in 1990 and if his real name is Mike? He came back and said yes.Then the Star Trek producers were unhappy with the lighting of the scene we shot so we had to do it over again. when I got back I saw Kristanna Loken again. I told her that my brother's friend had worked on her movie. She told me that she actually remembered him. While I was getting hair done Garrett Wang showed up to aks me who my brother was. I told him George. He's like oh yeah big guy. yeah thats me in his year book. so my whole family has Star Trek connections!  LOLThere is actually even more coincidences to this story but don't want to bore you. nonadult false Star Trek Story text blog 620 0 0.0 http://community.aetv.com/service/displayKickPlace.kickAction?u=18522776&as=119137 http://media.kickstatic.com/kickapps/images/user/defaultImage_160x120_B.jpg false 0 0 3478838 18522776 Member 0 http://community.aetv.com/_Facts-of-LifeMrs-Garrett/blog/3472418/119137.html I so enjoyed seeing Charlotte Rae on the TV Land awards. She is such a sweetheart! I remember working with her on a lifetime TV movie called Another Woman's Husband with Lisa Rinna and Gail O Grady. It was a swimming pool scene and she was playing a senior swimmer. She had on the cutest swim suit and this was 10 yrs ago. What a good sport. She was so thankful to have a job.  My favorite memory was I was wearing this cute purple Bikini and had  pretty decent abs at the time. As I walked by her she totally checked me out and said. wow it looks pretty good. I was like Oh my God ! Mrs Garrett just complimented me on my figure! I'm gonna die and go to heaven now! LOL It's funny ten yrs b4 she still looked exactly the same with the red hair and all. she was just as spunky and energetic. The only bitter part was that I knew at the time It would be my last job as I could no longer walk or stand. I remember taking that job cause I knew I'd be swimming all day. BUT I met Mrs. Garrett!   Linda :) I so enjoyed seeing Charlotte Rae on the TV Land awards. She is such a sweetheart! I remember working with her on a lifetime TV movie called Another Woman's Husband with Lisa Rinna and Gail O Grady. It was a swimming pool scene and she was playing a senior swimmer. She had on the cutest swim suit and this was 10 yrs ago. What a good sport. She was so thankful to have a job.  My favorite memory was I was wearing this cute purple Bikini and had  pretty decent abs at the time. As I walked by her she totally checked me out and said. wow it looks pretty good. I was like Oh my God ! Mrs Garrett just complimented me on my figure! I'm gonna die and go to heaven now! LOL It's funny ten yrs b4 she still looked exactly the same with the red hair and all. she was just as spunky and energetic. The only bitter part was that I knew at the time It would be my last job as I could no longer walk or stand. I remember taking that job cause I knew I'd be swimming all day. BUT I met Mrs. Garrett!   Linda :) Tue, 19 Apr 2011 01:54:04 GMT http://community.aetv.com/_Facts-of-LifeMrs-Garrett/blog/3472418/119137.html linkizzy77 2011-04-19T01:54:04Z AETV Community I so enjoyed seeing Charlotte Rae on the TV Land awards. She is such a sweetheart! I remember working with her on a lifetime TV movie called Another Woman's Husband with Lisa Rinna and Gail O Grady. It was a swimming pool scene and she was playing a senior swimmer. She had on the cutest swim suit and this was 10 yrs ago. What a good sport. She was so thankful to have a job.  My favorite memory was I was wearing this cute purple Bikini and had  pretty decent abs at the time. As I walked by her she totally checked me out and said. wow it looks pretty good. I was like Oh my God ! Mrs Garrett just complimented me on my figure! I'm gonna die and go to heaven now! LOL It's funny ten yrs b4 she still looked exactly the same with the red hair and all. she was just as spunky and energetic. The only bitter part was that I knew at the time It would be my last job as I could no longer walk or stand. I remember taking that job cause I knew I'd be swimming all day. BUT I met Mrs. Garrett!   Linda :) nonadult false Facts of Life/Mrs. Garrett! text blog 437 0 0.0 http://community.aetv.com/service/displayKickPlace.kickAction?u=18522776&as=119137 http://media.kickstatic.com/kickapps/images/user/defaultImage_160x120_C.jpg false 0 0 3472418 18522776 Member 0 http://community.aetv.com/_Good-Anti-Radiation-Tips/blog/3394607/119137.html Wow! I am shocked that the Radiation Plumes are heading towards San Diego. Arriving tommorow. And it is spooky that the Governor has declared a state of Emergency over it. There is so Much contradicting info coming out that I might be the only reliable source as to whether or not the levels are high enough to affect people. Believe me its not something I want to be able to do. So since this catastrophe happened I've been jogging my memory of helpful tricks I use to do to protect myself.1)Wear animal skins like leather. Vests would be helpful to protect Women's breast. Radiation tends to be attracted to Fatty tissue. I know this cause whenever CA. had a wild fire it would feel like my breasts were burning. The only way to get it to stop was placing leather material over it. One time i used my poor dog.2)Wear synthetic fabrics. Again when the burning started I noticed that Nylon or polyester would repel whatever was burning me. I believe its because the negative charge it carried repeled the negatively charged rays. At the same time I would rotate a little because wearing synthetic material all the time may create more static.3)Burn Lead candles. That worked for a while. When things got really bad the lead did seem to repel some of the rays.4) Everyone should be wearing turtle necks to protect their thyroids.5) Salt Baths may help to wash away contamination. I believe Salt is positively charged.6)Again with the colors. Red with White undertones would tend to repel. Clothing with yellow undertones would  probably absorb.7)What I did with my house was surround myself with certain colored clothing or objects like Picture frames and stuff that would absorb or repel the rays accordingly. ie.. A Salmon colored picture frame next to me would help repel. A maroon one further away would attract the rays in that direction. I little Feng Shuish.  I am seriously hoping I will not have to put this crap into practice. This entire situation is beyond words. fun thing would be to get one of those meters so that others could see just how much my ideas are of value. But I have already dubbed myself the Queen of Radiation. From practical experience I know they work. It sucks to be so affected by Radiation but I guess everything happens for a reason. Radiation Expertise is my calling. I always knew my pain would come in useful oneday. If i think of more ideas I use to use I will post them. Wow! I am shocked that the Radiation Plumes are heading towards San Diego. Arriving tommorow. And it is spooky that the Governor has declared a state of Emergency over it. There is so Much contradicting info coming out that I might be the only reliable source as to whether or not the levels are high enough to affect people. Believe me its not something I want to be able to do. So since this catastrophe happened I've been jogging my memory of helpful tricks I use to do to protect myself.1)Wear animal skins like leather. Vests would be helpful to protect Women's breast. Radiation tends to be attracted to Fatty tissue. I know this cause whenever CA. had a wild fire it would feel like my breasts were burning. The only way to get it to stop was placing leather material over it. One time i used my poor dog.2)Wear synthetic fabrics. Again when the burning started I noticed that Nylon or polyester would repel whatever was burning me. I believe its because the negative charge it carried repeled the negatively charged rays. At the same time I would rotate a little because wearing synthetic material all the time may create more static.3)Burn Lead candles. That worked for a while. When things got really bad the lead did seem to repel some of the rays.4) Everyone should be wearing turtle necks to protect their thyroids.5) Salt Baths may help to wash away contamination. I believe Salt is positively charged.6)Again with the colors. Red with White undertones would tend to repel. Clothing with yellow undertones would  probably absorb.7)What I did with my house was surround myself with certain colored clothing or objects like Picture frames and stuff that would absorb or repel the rays accordingly. ie.. A Salmon colored picture frame next to me would help repel. A maroon one further away would attract the rays in that direction. I little Feng Shuish.  I am seriously hoping I will not have to put this crap into practice. This entire situation is beyond words. fun thing would be to get one of those meters so that others could see just how much my ideas are of value. But I have already dubbed myself the Queen of Radiation. From practical experience I know they work. It sucks to be so affected by Radiation but I guess everything happens for a reason. Radiation Expertise is my calling. I always knew my pain would come in useful oneday. If i think of more ideas I use to use I will post them. Thu, 17 Mar 2011 21:40:35 GMT http://community.aetv.com/_Good-Anti-Radiation-Tips/blog/3394607/119137.html linkizzy77 2011-03-17T21:40:35Z AETV Community Wow! I am shocked that the Radiation Plumes are heading towards San Diego. Arriving tommorow. And it is spooky that the Governor has declared a state of Emergency over it. There is so Much contradicting info coming out that I might be the only reliable source as to whether or not the levels are high enough to affect people. Believe me its not something I want to be able to do. So since this catastrophe happened I've been jogging my memory of helpful tricks I use to do to protect myself.1)Wear animal skins like leather. Vests would be helpful to protect Women's breast. Radiation tends to be attracted to Fatty tissue. I know this cause whenever CA. had a wild fire it would feel like my breasts were burning. The only way to get it to stop was placing leather material over it. One time i used my poor dog.2)Wear synthetic fabrics. Again when the burning started I noticed that Nylon or polyester would repel whatever was burning me. I believe its because the negative charge it carried repeled the negatively charged rays. At the same time I would rotate a little because wearing synthetic material all the time may create more static.3)Burn Lead candles. That worked for a while. When things got really bad the lead did seem to repel some of the rays.4) Everyone should be wearing turtle necks to protect their thyroids.5) Salt Baths may help to wash away contamination. I believe Salt is positively charged.6)Again with the colors. Red with White undertones would tend to repel. Clothing with yellow undertones would  probably absorb.7)What I did with my house was surround myself with certain colored clothing or objects like Picture frames and stuff that would absorb or repel the rays accordingly. ie.. A Salmon colored picture frame next to me would help repel. A maroon one further away would attract the rays in that direction. I little Feng Shuish.  I am seriously hoping I will not have to put this crap into practice. This entire situation is beyond words. fun thing would be to get one of those meters so that others could see just how much my ideas are of value. But I have already dubbed myself the Queen of Radiation. From practical experience I know they work. It sucks to be so affected by Radiation but I guess everything happens for a reason. Radiation Expertise is my calling. I always knew my pain would come in useful oneday. If i think of more ideas I use to use I will post them. nonadult false Good Anti-Radiation Tips! text blog 782 0 0.0 http://community.aetv.com/service/displayKickPlace.kickAction?u=18522776&as=119137 http://media.kickstatic.com/kickapps/images/user/defaultImage_160x120_D.jpg false 3 0 3394607 18522776 Member 0 http://community.aetv.com/_Helpful-Radiation-Advice/blog/3389480/119137.html  For once I think I might have some lifesaving Information for the Japanese. Remember my crazy Color theory. Actually during a Fallout I think it would help. I wore certain colored clothing to avoid absorbing certain Radiowaves. Colors produce light waves so that we could all see the color. If people wear black out in the hot sun they will absorb more radiation from the sun. When they wear white or lighter colors they tend to deflect or REPEL the light energy and therefore we are cooler. I have a feeling that if the japanese wore certain colors during a fallout they would be able absorb less radiation. I think someone needs to get to Anderson Cooper and those reporters. It made me cringe that they were standing outside while Radiation was being released only miles away. Colors are protection. Seriously it REALLY did work for me. To me being in a room full of like 50 laptops feels like a fallout to me. So the only defense I had was colored clothing. I could not wear black for years. When people wore white around me it was miserable. Because all the rays would deflect onto me. This is REALLY odd. i use to joke about me being MISS Cancer  DETECTOR.  But for once i think my illness has come in VERY HANDY. Tell Anderson Cooper and Sanjay Gupta to wear white.  It could mean the difference btw getting cancer and not. If people wonder why i am So sensitive to radiation I think my connective tissue is so weak it makes me thin skinned so i more easily absorb things. I mean I even have water issues. Other EDS Pts have said that going in a swimming pool makes all there joints dislocate. Other people say that going outside for a walk makes there skin feel like its falling off. Its been written in EDS newsletters. I was lucky enough to find a way to protect myself. It felt like the armor my skin was not providing. The colors also protected my tendons from getting weaker from the radiation. I am truly Saddened. The meltdown looks pretty inevitable now. It is SO devastating. But if I had a child I would definitely make her wear protective clothing. Honestly I'm even nervous about the USS Ronald Reagan returning to San Diego. It docks right in front of my trolley stop. It would be bringing back tons of radioactiveEveryone pray that people remain safe. If people know of any victims please pass along this information. It woudl make the whole disaster of an intervention worth while. Even one life saved makes it all worth it. Linda :)  For once I think I might have some lifesaving Information for the Japanese. Remember my crazy Color theory. Actually during a Fallout I think it would help. I wore certain colored clothing to avoid absorbing certain Radiowaves. Colors produce light waves so that we could all see the color. If people wear black out in the hot sun they will absorb more radiation from the sun. When they wear white or lighter colors they tend to deflect or REPEL the light energy and therefore we are cooler. I have a feeling that if the japanese wore certain colors during a fallout they would be able absorb less radiation. I think someone needs to get to Anderson Cooper and those reporters. It made me cringe that they were standing outside while Radiation was being released only miles away. Colors are protection. Seriously it REALLY did work for me. To me being in a room full of like 50 laptops feels like a fallout to me. So the only defense I had was colored clothing. I could not wear black for years. When people wore white around me it was miserable. Because all the rays would deflect onto me. This is REALLY odd. i use to joke about me being MISS Cancer  DETECTOR.  But for once i think my illness has come in VERY HANDY. Tell Anderson Cooper and Sanjay Gupta to wear white.  It could mean the difference btw getting cancer and not. If people wonder why i am So sensitive to radiation I think my connective tissue is so weak it makes me thin skinned so i more easily absorb things. I mean I even have water issues. Other EDS Pts have said that going in a swimming pool makes all there joints dislocate. Other people say that going outside for a walk makes there skin feel like its falling off. Its been written in EDS newsletters. I was lucky enough to find a way to protect myself. It felt like the armor my skin was not providing. The colors also protected my tendons from getting weaker from the radiation. I am truly Saddened. The meltdown looks pretty inevitable now. It is SO devastating. But if I had a child I would definitely make her wear protective clothing. Honestly I'm even nervous about the USS Ronald Reagan returning to San Diego. It docks right in front of my trolley stop. It would be bringing back tons of radioactiveEveryone pray that people remain safe. If people know of any victims please pass along this information. It woudl make the whole disaster of an intervention worth while. Even one life saved makes it all worth it. Linda :) Wed, 16 Mar 2011 01:35:52 GMT http://community.aetv.com/_Helpful-Radiation-Advice/blog/3389480/119137.html linkizzy77 2011-03-16T01:35:52Z AETV Community  For once I think I might have some lifesaving Information for the Japanese. Remember my crazy Color theory. Actually during a Fallout I think it would help. I wore certain colored clothing to avoid absorbing certain Radiowaves. Colors produce light waves so that we could all see the color. If people wear black out in the hot sun they will absorb more radiation from the sun. When they wear white or lighter colors they tend to deflect or REPEL the light energy and therefore we are cooler. I have a feeling that if the japanese wore certain colors during a fallout they would be able absorb less radiation. I think someone needs to get to Anderson Cooper and those reporters. It made me cringe that they were standing outside while Radiation was being released only miles away. Colors are protection. Seriously it REALLY did work for me. To me being in a room full of like 50 laptops feels like a fallout to me. So the only defense I had was colored clothing. I could not wear black for years. When people wore white around me it was miserable. Because all the rays would deflect onto me. This is REALLY odd. i use to joke about me being MISS Cancer  DETECTOR.  But for once i think my illness has come in VERY HANDY. Tell Anderson Cooper and Sanjay Gupta to wear white.  It could mean the difference btw getting cancer and not. If people wonder why i am So sensitive to radiation I think my connective tissue is so weak it makes me thin skinned so i more easily absorb things. I mean I even have water issues. Other EDS Pts have said that going in a swimming pool makes all there joints dislocate. Other people say that going outside for a walk makes there skin feel like its falling off. Its been written in EDS newsletters. I was lucky enough to find a way to protect myself. It felt like the armor my skin was not providing. The colors also protected my tendons from getting weaker from the radiation. I am truly Saddened. The meltdown looks pretty inevitable now. It is SO devastating. But if I had a child I would definitely make her wear protective clothing. Honestly I'm even nervous about the USS Ronald Reagan returning to San Diego. It docks right in front of my trolley stop. It would be bringing back tons of radioactiveEveryone pray that people remain safe. If people know of any victims please pass along this information. It woudl make the whole disaster of an intervention worth while. Even one life saved makes it all worth it. Linda :) nonadult false Helpful Radiation Advice text blog 493 0 0.0 http://community.aetv.com/service/displayKickPlace.kickAction?u=18522776&as=119137 http://media.kickstatic.com/kickapps/images/user/defaultImage_160x120_B.jpg false 0 0 3389480 18522776 Member 0 http://community.aetv.com/_Meltdown/blog/3386729/119137.html My heart goes out to those in Japan. Nothing kills me more than finding out about a nuclear reactor leak. Honestly I get extremely sick just driving by a Cell phone tower. I'm one of the few people in the world who can feel x-rays. If it didn't make me so sick I could go to Japan and I could be the Radiation Detector. Radiation obviously affects me differently but the thought of people being affected so severely by it just breaks my heart. Seriously i use to not be able to get an x-ray without becoming nauseated. So My heart is completely broken about this potential disaster. please pray for the safety of those affected. Linda My heart goes out to those in Japan. Nothing kills me more than finding out about a nuclear reactor leak. Honestly I get extremely sick just driving by a Cell phone tower. I'm one of the few people in the world who can feel x-rays. If it didn't make me so sick I could go to Japan and I could be the Radiation Detector. Radiation obviously affects me differently but the thought of people being affected so severely by it just breaks my heart. Seriously i use to not be able to get an x-ray without becoming nauseated. So My heart is completely broken about this potential disaster. please pray for the safety of those affected. Linda Tue, 15 Mar 2011 02:04:57 GMT http://community.aetv.com/_Meltdown/blog/3386729/119137.html linkizzy77 2011-03-15T02:04:57Z AETV Community My heart goes out to those in Japan. Nothing kills me more than finding out about a nuclear reactor leak. Honestly I get extremely sick just driving by a Cell phone tower. I'm one of the few people in the world who can feel x-rays. If it didn't make me so sick I could go to Japan and I could be the Radiation Detector. Radiation obviously affects me differently but the thought of people being affected so severely by it just breaks my heart. Seriously i use to not be able to get an x-ray without becoming nauseated. So My heart is completely broken about this potential disaster. please pray for the safety of those affected. Linda nonadult false Meltdown text blog 444 0 0.0 http://community.aetv.com/service/displayKickPlace.kickAction?u=18522776&as=119137 http://media.kickstatic.com/kickapps/images/user/defaultImage_160x120_A.jpg false 0 0 3386729 18522776 Member 0 http://community.aetv.com/_Lovin-Charlie-Sheen/blog/3359802/119137.html I am seriously lovin me some Charlie Sheen. This is AWESOME. Does it get any better  than "SO you admit to taking exhorbitant amounts of crack?" No I didn't take it I bought it!" LOL How do u think your kids will feel when they see this. I think it's an awesome education. This stuff is so great. It's entertainment at its best people! the only complaint is I'm trying to enjoy my Charlie Sheen on Showbiz tonight and whose dopey face has to pop up but Dopey looking Ken Seeley. All I have to say is the expressions on his face reminded me of George Bush when he was faced with the Iraq war. Kinda clueless.....Very scary. I have to say Ken looks like he's kinda lost his way. Hmmmmm..... I know I shouldn't be laughing but seriously , Heck my show was considered funny. this SERIOUSLY TOPS IT!!! but I can see why people are so frustrated with me. The show made me out to be an addict and when I say I'm not it must make people crazy. Particularly addicts. Serious pain pts I wonder? Well some pain pts have had my back so what I have said has gotten through to some people.   Mackenzie Phillips said something Valuable that i think people who question whether or not my show was truthful should think about. "If someone is behaving a certain way that doesn't make sense than there must be an underlying issue that people don't know about. " Linda :)    I know this is bad but Charlie is so Entertaining right now , It'd be kinda fun if he stayed this way for a while. He needs to make a reality show while its still great.   I am seriously lovin me some Charlie Sheen. This is AWESOME. Does it get any better  than "SO you admit to taking exhorbitant amounts of crack?" No I didn't take it I bought it!" LOL How do u think your kids will feel when they see this. I think it's an awesome education. This stuff is so great. It's entertainment at its best people! the only complaint is I'm trying to enjoy my Charlie Sheen on Showbiz tonight and whose dopey face has to pop up but Dopey looking Ken Seeley. All I have to say is the expressions on his face reminded me of George Bush when he was faced with the Iraq war. Kinda clueless.....Very scary. I have to say Ken looks like he's kinda lost his way. Hmmmmm..... I know I shouldn't be laughing but seriously , Heck my show was considered funny. this SERIOUSLY TOPS IT!!! but I can see why people are so frustrated with me. The show made me out to be an addict and when I say I'm not it must make people crazy. Particularly addicts. Serious pain pts I wonder? Well some pain pts have had my back so what I have said has gotten through to some people.   Mackenzie Phillips said something Valuable that i think people who question whether or not my show was truthful should think about. "If someone is behaving a certain way that doesn't make sense than there must be an underlying issue that people don't know about. " Linda :)    I know this is bad but Charlie is so Entertaining right now , It'd be kinda fun if he stayed this way for a while. He needs to make a reality show while its still great.   Wed, 02 Mar 2011 12:35:31 GMT http://community.aetv.com/_Lovin-Charlie-Sheen/blog/3359802/119137.html linkizzy77 2011-03-02T12:35:31Z AETV Community I am seriously lovin me some Charlie Sheen. This is AWESOME. Does it get any better  than "SO you admit to taking exhorbitant amounts of crack?" No I didn't take it I bought it!" LOL How do u think your kids will feel when they see this. I think it's an awesome education. This stuff is so great. It's entertainment at its best people! the only complaint is I'm trying to enjoy my Charlie Sheen on Showbiz tonight and whose dopey face has to pop up but Dopey looking Ken Seeley. All I have to say is the expressions on his face reminded me of George Bush when he was faced with the Iraq war. Kinda clueless.....Very scary. I have to say Ken looks like he's kinda lost his way. Hmmmmm..... I know I shouldn't be laughing but seriously , Heck my show was considered funny. this SERIOUSLY TOPS IT!!! but I can see why people are so frustrated with me. The show made me out to be an addict and when I say I'm not it must make people crazy. Particularly addicts. Serious pain pts I wonder? Well some pain pts have had my back so what I have said has gotten through to some people.   Mackenzie Phillips said something Valuable that i think people who question whether or not my show was truthful should think about. "If someone is behaving a certain way that doesn't make sense than there must be an underlying issue that people don't know about. " Linda :)    I know this is bad but Charlie is so Entertaining right now , It'd be kinda fun if he stayed this way for a while. He needs to make a reality show while its still great.   nonadult false Lovin Charlie Sheen text blog 530 0 0.0 http://community.aetv.com/service/displayKickPlace.kickAction?u=18522776&as=119137 http://media.kickstatic.com/kickapps/images/user/defaultImage_160x120_B.jpg false 1 0 3359802 18522776 Member 0 http://community.aetv.com/_Go-Aztecs-March-Madness/blog/3352016/119137.html This is So Awesome! My first year in San Diego and the San diego State University Aztecs are practically undefeated!!FYI SDSU is usually where I Broadcast (LOL) from. I am so Excited! It reminds me of when I was an Undergrad at Uconn and it was our Dream Season. Made the final 8. I would ABSOLUTELY DIE if Uconn plays the Aztecs during the playoffs. I would not know who to root for. Today is our big game with BYU. For some reason I feel like I'm bringing luck since this is the second time I hang out at a University and the team does well. Cannot wait for March Madness!! Actually I think the Aztecs would defeat Uconn. That would be cool actually..  Linda :)    This is So Awesome! My first year in San Diego and the San diego State University Aztecs are practically undefeated!!FYI SDSU is usually where I Broadcast (LOL) from. I am so Excited! It reminds me of when I was an Undergrad at Uconn and it was our Dream Season. Made the final 8. I would ABSOLUTELY DIE if Uconn plays the Aztecs during the playoffs. I would not know who to root for. Today is our big game with BYU. For some reason I feel like I'm bringing luck since this is the second time I hang out at a University and the team does well. Cannot wait for March Madness!! Actually I think the Aztecs would defeat Uconn. That would be cool actually..  Linda :)    Sat, 26 Feb 2011 23:09:27 GMT http://community.aetv.com/_Go-Aztecs-March-Madness/blog/3352016/119137.html linkizzy77 2011-02-26T23:09:27Z AETV Community This is So Awesome! My first year in San Diego and the San diego State University Aztecs are practically undefeated!!FYI SDSU is usually where I Broadcast (LOL) from. I am so Excited! It reminds me of when I was an Undergrad at Uconn and it was our Dream Season. Made the final 8. I would ABSOLUTELY DIE if Uconn plays the Aztecs during the playoffs. I would not know who to root for. Today is our big game with BYU. For some reason I feel like I'm bringing luck since this is the second time I hang out at a University and the team does well. Cannot wait for March Madness!! Actually I think the Aztecs would defeat Uconn. That would be cool actually..  Linda :)    nonadult false Go Aztecs March Madness! text blog 416 0 0.0 http://community.aetv.com/service/displayKickPlace.kickAction?u=18522776&as=119137 http://media.kickstatic.com/kickapps/images/user/defaultImage_160x120_D.jpg false 0 0 3352016 18522776 Member 0 http://community.aetv.com/_Arthrogryposis-Obsession/blog/3342462/119137.html I just thought I'd give this condition some publicity. I Learned about it from a woman on You tube. I think it is a fascinating joint condition because supposedly its nonprogressive. I was looking at photos of infants who have it and Physical therapy seems to do wonders for the condition. It causes joint dislocations and contractures. But it seems to be more of a muscle problem. But seems quite disabling though surgery seems to help. I'm really wondering how serious of a pain problem it is. It has a really interesting tie to EDS but for different reasons. I'd love to hear from people with this condition. The one lady said she was in quite a lot of pain. When I see children with it on youtube they seem to get around with cute little adaptations. they don't seem to be wincing so I wonder what the pain issues are. I'm wierd I get fascinated by certain disorders, like autism. But since EDS is too Depressing to investigate I like finding sister conditions. Also interesting is that it is not genetic.  Linda :) I just thought I'd give this condition some publicity. I Learned about it from a woman on You tube. I think it is a fascinating joint condition because supposedly its nonprogressive. I was looking at photos of infants who have it and Physical therapy seems to do wonders for the condition. It causes joint dislocations and contractures. But it seems to be more of a muscle problem. But seems quite disabling though surgery seems to help. I'm really wondering how serious of a pain problem it is. It has a really interesting tie to EDS but for different reasons. I'd love to hear from people with this condition. The one lady said she was in quite a lot of pain. When I see children with it on youtube they seem to get around with cute little adaptations. they don't seem to be wincing so I wonder what the pain issues are. I'm wierd I get fascinated by certain disorders, like autism. But since EDS is too Depressing to investigate I like finding sister conditions. Also interesting is that it is not genetic.  Linda :) Thu, 24 Feb 2011 23:48:03 GMT http://community.aetv.com/_Arthrogryposis-Obsession/blog/3342462/119137.html linkizzy77 2011-02-24T23:48:03Z AETV Community I just thought I'd give this condition some publicity. I Learned about it from a woman on You tube. I think it is a fascinating joint condition because supposedly its nonprogressive. I was looking at photos of infants who have it and Physical therapy seems to do wonders for the condition. It causes joint dislocations and contractures. But it seems to be more of a muscle problem. But seems quite disabling though surgery seems to help. I'm really wondering how serious of a pain problem it is. It has a really interesting tie to EDS but for different reasons. I'd love to hear from people with this condition. The one lady said she was in quite a lot of pain. When I see children with it on youtube they seem to get around with cute little adaptations. they don't seem to be wincing so I wonder what the pain issues are. I'm wierd I get fascinated by certain disorders, like autism. But since EDS is too Depressing to investigate I like finding sister conditions. Also interesting is that it is not genetic.  Linda :) nonadult false Arthrogryposis Obsession text blog 429 0 0.0 http://community.aetv.com/service/displayKickPlace.kickAction?u=18522776&as=119137 http://media.kickstatic.com/kickapps/images/user/defaultImage_160x120_E.jpg false 0 0 3342462 18522776 Member 0 http://community.aetv.com/_Hef-is-Stubborn/blog/3326626/119137.html Ok, It's official. I think Hef proposed to get Holly's attention. He obviously loves her more than Crystal. The way he looks at her. OMG. It's so Sad. I'm so Glad Claire St. Claire says to Holly if she married Hef's son and Holly married Hef she'd be her Stepmom. LOL. At least there may still be hope. I think they are both too proud to ask. Holly has so much more to offer. He's marrying the rebound girl. WTF. Maybe he'll come to his senses b4 he gets married  and do the right thing. Honestly what is he thinking. All he needs to do is rewatch the freakin episode and see the look in both their eyes to figure it out.  I can't believe he can't suck up his pride and just ask Holly to come back to him. Ok, It's official. I think Hef proposed to get Holly's attention. He obviously loves her more than Crystal. The way he looks at her. OMG. It's so Sad. I'm so Glad Claire St. Claire says to Holly if she married Hef's son and Holly married Hef she'd be her Stepmom. LOL. At least there may still be hope. I think they are both too proud to ask. Holly has so much more to offer. He's marrying the rebound girl. WTF. Maybe he'll come to his senses b4 he gets married  and do the right thing. Honestly what is he thinking. All he needs to do is rewatch the freakin episode and see the look in both their eyes to figure it out.  I can't believe he can't suck up his pride and just ask Holly to come back to him. Sun, 20 Feb 2011 01:36:23 GMT http://community.aetv.com/_Hef-is-Stubborn/blog/3326626/119137.html linkizzy77 2011-02-20T01:36:23Z AETV Community Ok, It's official. I think Hef proposed to get Holly's attention. He obviously loves her more than Crystal. The way he looks at her. OMG. It's so Sad. I'm so Glad Claire St. Claire says to Holly if she married Hef's son and Holly married Hef she'd be her Stepmom. LOL. At least there may still be hope. I think they are both too proud to ask. Holly has so much more to offer. He's marrying the rebound girl. WTF. Maybe he'll come to his senses b4 he gets married  and do the right thing. Honestly what is he thinking. All he needs to do is rewatch the freakin episode and see the look in both their eyes to figure it out.  I can't believe he can't suck up his pride and just ask Holly to come back to him. nonadult false Hef is Stubborn text blog 303 0 0.0 http://community.aetv.com/service/displayKickPlace.kickAction?u=18522776&as=119137 http://media.kickstatic.com/kickapps/images/user/defaultImage_160x120_A.jpg false 0 0 3326626 18522776 Member 0